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Author Topic: Started my Transplant Process at Mayo Clinic Arizona today.  (Read 2342 times)
hotnspicyazgirl
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« on: April 07, 2010, 09:13:18 PM »
Mayo Clinic Az is the absolute kindest, compassionate, funny, loving, smart, organized group of people I have ever had the pleasure of working with. I should be listed on April 20th! Very excited to have my donors tested next. I was told today Medicare does not cover IVIG therapy anymore, so I may have to raise $20,000.00  So if I do, I will.   Just thought Id share.

Deanna
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galvo
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« Reply #1 on: April 07, 2010, 10:03:35 PM »
All my best wishes!
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Galvo
Chris
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« Reply #2 on: April 07, 2010, 10:27:26 PM »
Congrats on starting the process. I did nt know that about the IVIG, just tells me how lucky I had it when I had mine.
 
Hope ypur dpnprs wprk out.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
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paris
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« Reply #3 on: April 08, 2010, 10:09:29 AM »
It is good that you like the center so much. That will help.   My private insurance paid for most of the IVIG and it was over $20,000 for each infusion.  I didn't realize Medicare didn't cover it.  Let us know how things go and good luck when the donor testing begins. I hope the testing goes fast and the transplant will happen soon.    :2thumbsup;
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MooseMom
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« Reply #4 on: April 08, 2010, 12:00:34 PM »
Oh, please keep us posted!  I love good news!
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monrein
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« Reply #5 on: April 08, 2010, 01:35:19 PM »
 :clap;  except for the part about the $20,000 of course.
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Sluff
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« Reply #6 on: April 08, 2010, 04:54:54 PM »
Awesome news!  :thumbup;
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edersham
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« Reply #7 on: April 11, 2010, 07:18:06 AM »
 :clap;
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edersham
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« Reply #8 on: April 11, 2010, 07:38:56 AM »
 :clap;
I totally agree about Mayo in Phoenix.  I started my screening process with them late Oct., 2009 .  They did  all the tests in house in five days.  They have awesome lodging 1/2 mile away at the Transplant house($25 a day donation requested but can be waived if necessary). 8 days later I was approved for listing. I received my transplant Mar. 23 from my second potential donor.The awesome care you describe continues during and after as well. My surgeon(Dr. Reddy) and Neph (Dr. Hielman) are awesome and are frequent authors of papers in Medical  journals. Based on some of the experiences with transplant centers I believe Mayo Phoenix must be one  of the best centers in the country.  Good luck the rest of the way with your journey.

Ed
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