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Author Topic: Hi my name is Nancy: a newbie by way of Nebraska  (Read 2126 times)
mamanan62
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« on: March 27, 2010, 12:30:32 AM »

I'm 65 years old, disabled by a stroke in 2005, worked my way back to walking with a cane for short distances and have a power chair for long hauls!! I've known for 2 years that I had CKD, and that was OK.  I wrapped my mind around it and learned to live with it.  But this is a horse of a different colored. But I'm getting ahead of my self.  In May of 2009, I decided to get my fistula put in.   Thinking, I still had at least a year, and it would have plenty of time to mature.  Well, as we all know, this disease has no rhyme or reason, and in 6 months I lost my kidneys. Mostly due to high blood pressure, but what made them go at this particular time, I have no idea. They guess it was from "system shock" from being ill.  Anyway, November 20, 2009, My life took another jolting curve and I'm now on "in center' hemodialysis, with a fistula that is not wanting to cooperate (mature).  I have had it reworked once and a fistula-gram done once, but the venous side is very deep and hard to get a needle in.  Any way that's me in a nut shell.  Hope I didn't get to wordy.
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High B/P,                               Asthma                                2007  Diagnosed Late Stage 3 CKD       
RLS (Restless leg Syndrome)     Oxygen Deficiency                 2009  May--Fistula in Place   
Sleep Apnea                           Allergies                               2009  Nov 20,  KIDNEY FAILURE
Acid Reflux                              Depression                           2009  Nov 21  Neck cath in place and had 1st Dialysis session
Kidney Infections                      Heart Disease/Angina/A-Fib    2009  Nov 22, Fistula reworked
3 Mini Strokes                           Anemia                              2010   Jan       Fistula reworked 2nd time
Rerun
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Going through life tied to a chair!

« Reply #1 on: March 27, 2010, 08:02:20 AM »

Not wordy at all mamanan62.  Welcome to IHD and I'm thrilled you found us.  This is a place to vent where we all understand.  Where are you from?  They may need to bring your venous side up closer to the surface.  They they won't have to dig. 

I hope you enjoy our site.

Rerun, Moderator                  :welcomesign;
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monrein
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Might as well smile

« Reply #2 on: March 27, 2010, 08:06:41 AM »

 :welcomesign;  Sorry you've had such a rough time and now dialysis.  Feel free to ask any questions you may have and someone here is bound to have suggestions. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #3 on: March 27, 2010, 02:12:46 PM »

Mamanan, are you receiving dialysis via a catheter at the moment?  Are they pretty hopeful that your fistula will mature in time?  My mom had a catheter for 18 months because it took that long for her to find herself to a good enough vascular surgeon who could create an upper arm fistula.  She is in her early eighties and has been on dialysis for 5 years now with a fistula that is a work of art!  (Truly, her surgeon took a photo of it, he was so proud!)  So, hang in there!

I got my fistula done last week and I am hoping it will mature OK. 

How are you feeling?  You've had some really hard knocks, haven't you?  Is dialysis at least making you feel better?

Welcome to this site; there are so many people here who are knowledgable and supportive.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #4 on: March 27, 2010, 08:34:38 PM »

 :welcomesign; mamanan62. Glad you've joined us. I hope the fistula improves soon.
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Galvo
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #5 on: March 27, 2010, 10:43:21 PM »

 :waving; Hi Nancy,
I am happy you joined us and introduced yourself. I hope to hear more from you.
Good luck with that fistula. Have you done exercises to get it to mature?
 :welcomesign;
okarol/admin
 
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mamanan62
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« Reply #6 on: March 27, 2010, 11:44:03 PM »

Mamanan, are you receiving dialysis via a catheter at the moment?  Are they pretty hopeful that your fistula will mature in time?  My mom had a catheter for 18 months because it took that long for her to find herself to a good enough vascular surgeon who could create an upper arm fistula.  She is in her early eighties and has been on dialysis for 5 years now with a fistula that is a work of art!  (Truly, her surgeon took a photo of it, he was so proud!)  So, hang in there!

I got my fistula done last week and I am hoping it will mature OK. 

How are you feeling?  You've had some really hard knocks, haven't you?  Is dialysis at least making you feel better?

Welcome to this site; there are so many people here who are knowledgable and supportive.
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High B/P,                               Asthma                                2007  Diagnosed Late Stage 3 CKD       
RLS (Restless leg Syndrome)     Oxygen Deficiency                 2009  May--Fistula in Place   
Sleep Apnea                           Allergies                               2009  Nov 20,  KIDNEY FAILURE
Acid Reflux                              Depression                           2009  Nov 21  Neck cath in place and had 1st Dialysis session
Kidney Infections                      Heart Disease/Angina/A-Fib    2009  Nov 22, Fistula reworked
3 Mini Strokes                           Anemia                              2010   Jan       Fistula reworked 2nd time
looneytunes
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Wishin' I was Fishin'

« Reply #7 on: March 28, 2010, 06:44:35 AM »

Hi Mamanana62, glad you joined IHD.   :welcomesign;  My hubby had his fistula built early this month and we are waiting for it to mature so it can be used.  Right now he is being accessed through a chest catheter. 

Lots of great people on here who will help you in any way they can.  So, ask questions, read posts and just jump right in. 
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"The key to being patient is having something to do in the meantime" AU
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