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howdy
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Topic: howdy (Read 1903 times)
suzyq73176
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howdy
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on:
March 18, 2010, 05:29:24 PM »
Well Hello. My name is Sue. I am a 33 year old mom of three. I that landed me 9 year old twins and a 15 year old. I was diagnosed in 2006 with ESRD. I began hemo and shortly after PD. I have endured several surgeries since then including the placement of a Shiley cath and peritoneal cath, I had most of my parathyroids removed and had wounds debreided during a six month hospital stint for calciphylaxis. I also suffered seizures that landed me in ICU.
I am currently awaiting transplant at MGH. I would love to hear from others in my shoes. I wish everyone the best of luck.
Sue
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Rerun
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Going through life tied to a chair!
Re: howdy
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Reply #1 on:
March 18, 2010, 05:34:31 PM »
Sue, I'm so glad you joined our site. Sounds like you have had a bad time of it. I hope you get a transplant soon. Where are you from? Where is MGH?
Looking forward to your posts!!
Rerun, Moderator
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monrein
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Might as well smile
Re: howdy
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Reply #2 on:
March 18, 2010, 05:37:35 PM »
Sue. Glad you joined and I look forward to hearing about more of your experiences with ESRD. Lots of information and support here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
galvo
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Re: howdy
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Reply #3 on:
March 18, 2010, 08:49:39 PM »
Sue. Glad you've joined us. Is the M for Melbourne?
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Galvo
Jean
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Re: howdy
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Reply #4 on:
March 18, 2010, 11:31:03 PM »
to IHD Sue, glad you joined us. Not glad for your circumstances of course, just that you found the best web site ever.
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One day at a time, thats all I can do.
suzyq73176
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Re: howdy
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Reply #5 on:
March 19, 2010, 06:21:57 AM »
Thanks for all the welcoming wishes. The M in MGH is for Massachsuetts General Hospital. I live in Worcester County, Mass.
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looneytunes
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Wishin' I was Fishin'
Re: howdy
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Reply #6 on:
March 19, 2010, 06:43:48 AM »
Hi Suz and welcome to the IHD gang...
Lots of great folks on here that have been on similar journeys as you. I am a caregiver to my husband who is on clinical hemo right now after a 2 year stint on PD. Hope your transplant comes soon and I'm looking forward to geting to know you.
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"The key to being patient is having something to do in the meantime" AU
MooseMom
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Re: howdy
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Reply #7 on:
March 19, 2010, 03:35:16 PM »
Dear oh dear, what a story! This site is a godsend. Welcome! There are so many people here who can give you all kinds of support.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
kellyt
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Re: howdy
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Reply #8 on:
March 19, 2010, 03:40:35 PM »
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
okarol
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Photo is Jenna - after Disneyland - 1988
Re: howdy
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Reply #9 on:
March 22, 2010, 01:49:49 AM »
Hi Sue,
Man, that's a lot to go through for such a young woman and I am sure your experience is valuable to other members on the forum. I hope things stableize for you and you get a kidney soon. I'll bet those kids keep you busy!
Welcome!
okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
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