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Author Topic: My night to cry.....  (Read 1728 times)
mamanan62
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« on: March 28, 2010, 02:43:28 AM »

I'm a single mom, of two, a boy married with 2 boys of his own, and 4 step children, and a daughter who has one son, and a soon to be step son.  I was married twice and had a significant other.  All were the same type.  They liked to hurt my body and soul.  So I decided I could do this life with me and my kids.  And life has been good.  Oh I've had my ups and downs, but like they say,  I would grab back my problems from the pile, in a heart beat.  My Medical problems started with high blood pressure and went to "pot in a handbag"!!  Heart problems, left ventricle thickening due to high b/p.  A-Fib,  mini strokes, asthma, sleep apnea, hypothyroidism, acid reflux, parathyroid disease, CKD leading to end stage kidney failure, and being on oxygen full time because I'm unable to keep my oxygen levels up.  These past 2 years that I have known about the CKD, I have spent trying to prolong the life of my kidneys.  and getting sicker by the day  until a year ago I gave up and moved in with my daughter in order to have some help with everyday things.  She now drives me to my treatments (40 mile one-way).   I thought I had a year at least before my kidneys would fail so I had my fistula put in, in May of 2009.  In November, 2009, I went to the emergency room with chest pains, vomiting, and so weak I could hardly move.  I was in kidney failure.   I was suppose to have almost a year, and overnight, they were gone.  they took me by ambulance 3 hour ride to a Colorado hospital where they put in a neck cath because my fistula was not mature enough yet.  and started me on hemodialysis.  And its been nothing, if not interesting from then on.  every D day is an adventure.  To be con't
« Last Edit: March 28, 2010, 02:47:07 AM by mamanan62 » Logged

High B/P,                               Asthma                                2007  Diagnosed Late Stage 3 CKD       
RLS (Restless leg Syndrome)     Oxygen Deficiency                 2009  May--Fistula in Place   
Sleep Apnea                           Allergies                               2009  Nov 20,  KIDNEY FAILURE
Acid Reflux                              Depression                           2009  Nov 21  Neck cath in place and had 1st Dialysis session
Kidney Infections                      Heart Disease/Angina/A-Fib    2009  Nov 22, Fistula reworked
3 Mini Strokes                           Anemia                              2010   Jan       Fistula reworked 2nd time
monrein
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Might as well smile

« Reply #1 on: March 28, 2010, 06:38:20 AM »

You poor thing!  You really have been through an awful lot in so many ways.   :welcomesign; to IHD and I hope that you'll find this site helpful and supportive.  There are certainly people here who can understand your struggles with D and although no one person will have had all your experiences there will usually be someone who has shared similar things.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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