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Author Topic: I am no13 on the o(bloodgroup) transplant list.  (Read 2592 times)
Des
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« on: March 04, 2010, 09:44:19 AM »
 :bandance; :cheer:

I had a call today from the transplant co-ordinator with good news.
I am no 13 on the transplant list (out of +-184) This June it will be 2 years!!!!!

I have accumulated 7.5 marks so far (the guy in no1 has 13)

I am getting closer people. And here I was thinking I was off the list. :yahoo; :yahoo;   

When you get in the top 10 you have to have blood sent to them monthly. They keep it on ice and can do a quick match test before they phone you.

PEOPLE THIS IS JUST GREAT!!!! I have  roundabout a year or so left. ( I am guessing here)
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #1 on: March 04, 2010, 10:02:39 AM »
  Des    best news I have heard all week.....   all month.....  hey ... your almost there.....  Heck  you may get a transplant before you even start D......   and then another journey begins......    I am so happy for you ....
   See good things happen to good people......

 :cheer:    :clap;     :2thumbsup;      :yahoo;     :yahoo;     :yahoo;         :flower;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: March 04, 2010, 10:31:55 AM »
Great! Good luck to you!  :2thumbsup;
Our transplant wait list is on a national level and because it's based on tissue match it's a moving target as to what ranking a patient would have, depending on who matches with the deceased donor at the time. There are some patients who have been waiting over 10 years, while others get a perfect match and get transplanted quickly.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #3 on: March 04, 2010, 01:01:07 PM »
Des!!!!! What good news.   Keeping everything crossed that your wait won't be too too long.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #4 on: March 04, 2010, 02:01:29 PM »
Keep your bas packed!  That's great!   Congratulations!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Lisa
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« Reply #5 on: March 04, 2010, 02:36:34 PM »
Great News!!!!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
Romona
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« Reply #6 on: March 04, 2010, 07:24:40 PM »
I hope your wait is short. That is so great!
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galvo
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« Reply #7 on: March 04, 2010, 08:33:21 PM »
Good on ya, Des!
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Galvo
Sunny
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Sunny
« Reply #8 on: March 04, 2010, 08:57:02 PM »
Lucky!
Congratulations. I hope it happens soon.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
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« Reply #9 on: March 05, 2010, 01:18:17 AM »
YAY Des!!!! Keep your bag packed, your hair done and your manicure up so that when you run out the door, you will be lucky and beautiful too!!! Best of luck. Hope it happens really soon.
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One day at a time, thats all I can do.
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