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Author Topic: Hi everyone  (Read 1981 times)
miamichel
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« on: March 04, 2010, 09:09:58 PM »
Been on PD since April 2008 here with ups and downs. actually I exprerienced my third peritonitis yesterday ....
I was looking for a website like ths one and actually my nutritionist told me about it. So here I am.
My name is Michel, I am french and been living in the USA for 10 years. I used to be very involved in fitness and thats probably the reason I went kidney sick.
I work full time and work out too, leave alone with my most loyal companion, Audrey , a 8 years old black lab/border colley female that I rescued when she was a puppy.
I am on the national kidney transplant list since last year and my transplant center is Lifelink in Tampa ( high rate of success...well they told me).
Sometimes i am wondering if i should switch to hemo but most tell me i would be miserable.....Any advice on that?
A thing I learned is too stay very positive and fight the disease like a soldier...since i dont know anyone whoi could be my role model...
To any one on this board, good luck and lots of lov e.
Michel
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Zach
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"Still crazy after all these years."
« Reply #1 on: March 04, 2010, 09:13:37 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #2 on: March 04, 2010, 09:15:46 PM »
Hello and Welcome...... I love dogs too and I have a couple of siberian Huskies that keep me going ......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
galvo
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« Reply #3 on: March 04, 2010, 09:16:43 PM »
G'day, Michel.  :welcomesign;. I've been on in-centre HD for a few months and am finding it allright, but most PDers here seem to swear by that method. Why do you reckon the fitness thing had an adverse efffect on your kidneys?

Good to have you here. Return often, and good on your nutritionist for referring you.

You'll find a link for photos of pets on the site. Make sure you put up Audrey's photo.
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Galvo
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« Reply #4 on: March 05, 2010, 01:02:12 AM »
 :welcomesign; to IHD. Glad you found us.
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #5 on: March 05, 2010, 04:45:20 AM »
 :welcomesign;  Michel.  This is a great place for information and support which all of us kidney people clearly need.  I too am curious about what contributed to your kidney failure.  I look forward to hearing more of your story and recommend that you read as much as you can of the threads here, since many topics have been discussed.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
miamichel
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« Reply #6 on: March 05, 2010, 05:11:23 AM »
Tks to you all for the nice welcome.
The fitness drugs - mostly creatine powder- got my kidneys weak. and things like hydroxicut did not help either..
I am still very grateful for being alive and able to work and enjoy life...even if meeting -dating- is kinda tough.
Having a catherer below your belly button does not help for intimacy... but it is what it is i guess and hopefully when i get a transplant, things would be better  ...
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Rerun
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Going through life tied to a chair!
« Reply #7 on: March 05, 2010, 06:29:47 AM »
Michel welcome to IHD and I'm so glad you found us.  Tell your dietition to keep up the good work.

I think PD is better than hemo.  More freedom.  Stay with it until they tell you that it is no longer working for you.  Best wishes and there is lots to read on here.  Enjoy!

Rerun, Moderator                     :welcomesign;
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ceejster
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« Reply #8 on: March 05, 2010, 06:35:30 AM »
Welcome!
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peleroja
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I have 16 hats, all the same style!
« Reply #9 on: March 05, 2010, 09:48:01 AM »
Hi, Michel, and welcome to the group.  I've been on both hemo and PD and I much prefer PD.  Much more flexibility in your life.  Are you on the cycler?  Hope to hear more about you.
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st789
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« Reply #10 on: March 05, 2010, 10:13:16 AM »
 Welcome, members here are willing to share information and emotional support. :welcomesign;
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paris
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« Reply #11 on: March 05, 2010, 10:53:05 AM »
Michel,  :welcomesign;   We are glad your nutritionist recommended this site.  This is a great place for information but also, a great place for support.   It seems like you have a good attitude and that is so important.   I hope you post often and share more of your experiences.  Welcome to IHD    :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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