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Dialysis Discussion
Dialysis: General Discussion
Waiting for a date.
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Topic: Waiting for a date. (Read 2583 times)
sico
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wheres my bike gone?
Waiting for a date.
«
on:
February 19, 2010, 09:26:24 PM »
I met the Transplant Surgeon on Wednesday morning.
On that afternoon my parents had an appointment with their Neph.
He said that he is happy for my father to donate to me. Dad is in good shape for 55.
They're talking late April or sometime in May.
I will post up when i get a date.
Dad still has to meet his Surgeon and we do some of the blood tests for a third time, to be sure.
I can't say i'm excited, would rather not be doing any of this. D or Tx.
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Brad
"Got myself a one way ticket, going the wrong way" - Bon Scott
6/11/08 diagnosed with ESRF, dialysis that day
HD and PD
8th of April 2010 Live kidney transplant from my father.
BASSMAN
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Re: Waiting for a date.
«
Reply #1 on:
February 19, 2010, 09:40:28 PM »
Good luck!
I am just starting the process myself. I am racing the clock and trying to get a preemptive transplant and avoid dialysis. It's all kind of scary and I still have a bit of denial and can't believe this is really happening to me.
Logged
Membranous Glomerulonephritis confirmed by biopsy in April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010
http://www.caringbridge.org/visit/phillipjohnsen
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Waiting for a date.
«
Reply #2 on:
February 19, 2010, 11:39:35 PM »
It's good to have options!
Best wishes to you!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Yvonne
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Yvonne
Re: Waiting for a date.
«
Reply #3 on:
February 19, 2010, 11:49:09 PM »
Good Luck I hope all goes well
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
billybags
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Re: Waiting for a date.
«
Reply #4 on:
February 20, 2010, 03:31:32 AM »
Fingers crossed.
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galvo
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Re: Waiting for a date.
«
Reply #5 on:
February 20, 2010, 03:35:16 AM »
Good luck!
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Galvo
cariad
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What's past is prologue
Re: Waiting for a date.
«
Reply #6 on:
February 20, 2010, 12:33:11 PM »
Sico, I can completely relate to not really being excited about it. I often look at transplant as the best (for me) of a set of miserable options. I'm hoping for a smooth ride for you. Good luck.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
RichardMEL
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Re: Waiting for a date.
«
Reply #7 on:
February 21, 2010, 12:19:54 AM »
great news sico!! I know you'd rather not have to deal with any of this stuff, but the option of a live donation is a fantastic one to have. I think you mentioned elsewhere you've been on D for 18 months or so? That's a long time, but it's nothing compared to a lot of people waiting years and years for a cadaveric transplant (let alone those souls who for whatever reason are not suitable for a transplant). Your father wants to donate and is in good shape - this is a wonderful situation for you potentially - to give you your lifre back - and this is something your dad would be so happy to be involved with I am sure.
Hope you got your date soon mate!!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
sico
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wheres my bike gone?
Re: Waiting for a date.
«
Reply #8 on:
February 21, 2010, 03:38:00 AM »
Thanks you guys.
BASSMAN - Hope you can avoid Dialysis.
cariad - Miserable options, sometimes i think of it like a catch 22 situation. But you know the medical experts tell us tx is the way to go.
A smooth ride would be good.
karol - I am lucky to have options, yrs.
Richard - I often think about people on the waiting list with no other option, i tell everyone that i am lucky.
I've read that here in Aus there's over 10,000 people on dialysis and only 1,300 on the waiting list for a kidney. So i guess the other 8,000+ have other major health problems.
My family (mum, dad, brother and sister) are the same blood type as me. Had a few friends say they would be tested if things didn't work out.
I'll be happy when i hear that you get the call, this place is going to go off!
What happened to the Tigers down in Tassie last week?
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Brad
"Got myself a one way ticket, going the wrong way" - Bon Scott
6/11/08 diagnosed with ESRF, dialysis that day
HD and PD
8th of April 2010 Live kidney transplant from my father.
RichardMEL
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Re: Waiting for a date.
«
Reply #9 on:
February 21, 2010, 04:54:26 AM »
lol yeah I often wonder what will come first - a win for the tiggers or the phone call!!!
It's great you have so many options - hoping so much this works out for you and you can make dialysis a not-so-fond memory for many years to come - get back out on that bike and sail into the sunset!!!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cdwbrooklyn
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Positive Thoughts equal Positive Energy
Re: Waiting for a date.
«
Reply #10 on:
February 21, 2010, 06:33:49 PM »
Good luck Sico. May God bless your transplant that it will last for a very very very very very very very long time.
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Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.
Lillupie
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wedding 12-10-11
Re: Waiting for a date.
«
Reply #11 on:
February 21, 2010, 08:34:31 PM »
Wow you are very lucky. They do say that live kidneys are to last longer then a cadaver one. I am a slight jealous. In October it will be 3 years since i started dialysis. And I wish I could get a kidney.
Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Ang
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Re: Waiting for a date.
«
Reply #12 on:
February 22, 2010, 11:43:56 PM »
good luck sico,
get you and richardmel transplants, then ME , gotta get us aussies off the bloody waiting list
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live life to the full and you won't die wondering
sico
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wheres my bike gone?
Re: Waiting for a date.
«
Reply #13 on:
February 23, 2010, 02:34:41 AM »
Sounds like a plan Ang
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Brad
"Got myself a one way ticket, going the wrong way" - Bon Scott
6/11/08 diagnosed with ESRF, dialysis that day
HD and PD
8th of April 2010 Live kidney transplant from my father.
nycrtst85
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Re: Waiting for a date.
«
Reply #14 on:
February 23, 2010, 03:09:02 PM »
I wish you the best MAY GOD BE WITH YOU AT ALL TIMES.a person getting a transplant is a beautiful thing.
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Rogelio Ronco
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