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Author Topic: Got my letter today...I am on the UNOS list  (Read 2956 times)
BASSMAN
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« on: February 18, 2010, 06:09:02 PM »
I am on the list and my wife will start her donor testing 01 March.  :pray;
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: February 18, 2010, 06:12:03 PM »
 :yahoo; YAY!!!  :yahoo;

Best of luck with everything!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Rerun
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Going through life tied to a chair!
« Reply #2 on: February 18, 2010, 06:15:36 PM »
Best of luck!

                  :bandance;
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paris
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« Reply #3 on: February 18, 2010, 06:18:21 PM »
Good for you   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: February 18, 2010, 06:20:55 PM »

List...? There's a list??  >:D

Just kidding.

That's fabulous news! Your wife is an angel, tell her I think she ROCKS!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #5 on: February 18, 2010, 06:21:12 PM »
Congratulations!   What was the time frame between when your transplant center approved you and when you received your letter from UNOS?
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Sluff
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« Reply #6 on: February 18, 2010, 06:27:30 PM »
Thats awesomeful news!!   :rofl;
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BASSMAN
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« Reply #7 on: February 18, 2010, 06:33:23 PM »
Thank you all,

okarol,

Jenna's story and your guidance really helped me get the ball rolling.  You gave me the little push I needed at the right time.

Thank you!
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: February 18, 2010, 06:35:00 PM »
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #9 on: February 18, 2010, 07:29:58 PM »
Well, good for you!!!! Hope it is soon and hope it all goes well for you.  :clap; :bandance;
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #10 on: February 18, 2010, 07:40:52 PM »
 :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #11 on: February 18, 2010, 11:25:53 PM »
Best of Luck there Bassman
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
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« Reply #12 on: February 19, 2010, 04:08:20 AM »
Good luck Bassman, and congratulations  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
cariad
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What's past is prologue
« Reply #13 on: February 20, 2010, 12:35:13 PM »
Congrats on getting this important step accomplished. Good luck to the both of you! :bestwishes;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
kellyt
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« Reply #14 on: February 20, 2010, 03:06:54 PM »
Congratulations on getting on "the list".  March 1st will be here before you know it and testing will be exciting and draining for both of you.  Best of luck to you both!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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