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Author Topic: I am on my own  (Read 3120 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: February 11, 2010, 05:32:16 PM »
 I am on my own..... training is done  and I did my first D at home with Nxstage......   home visit went well..... 
      Del of supplies today went well  not as many as I thought.....   I am glad I went with Nxstage......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: February 11, 2010, 05:35:16 PM »
Woo hoo!
What a great start!
Short n sweet frm my iPod.
Computer in the shop for a couple days!  :-(
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
sullidog
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« Reply #2 on: February 11, 2010, 05:37:11 PM »
Hope it all goes well for you!
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Jean
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« Reply #3 on: February 12, 2010, 12:05:31 AM »
You are awesome Kathy. Now, what kind of supplies do they send you?
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One day at a time, thats all I can do.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: February 12, 2010, 12:08:44 AM »
I know I've said it before Kathy, but you are an inspiration!  Following along with you on this jouney has seeriously eased my mind about ever having to do hemo.  I am so much more at ease with the thought of it after reading how you have coped with it all.  Thank you so much and congratulations!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.
« Reply #5 on: February 12, 2010, 07:09:15 AM »
Yea.  Now come teach me stuff!  But wash your hands first --  remember the frogs and stuff.....
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
billybags
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« Reply #6 on: February 12, 2010, 08:00:35 AM »
 tyefly, That is brilliant, keep it up I hope all goes well.
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jbeany
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Cattitude
« Reply #7 on: February 12, 2010, 08:32:06 AM »
 :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: February 12, 2010, 10:15:08 AM »
 :clap; Good luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #9 on: February 12, 2010, 11:32:57 AM »
Sweet!
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
HubbysPartner
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Our first New's Year's together - A new beginning
« Reply #10 on: February 12, 2010, 05:32:43 PM »
Congratulations Kathy!   :cheer:  I knew you would like nxstage once you got used to it.  You will be a seasoned veteran in no time!
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Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage

Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
cookie2008
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« Reply #11 on: February 12, 2010, 10:04:36 PM »
Its so much better enjoy.   :2thumbsup; :2thumbsup;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #12 on: February 12, 2010, 10:30:44 PM »
  I am pretty proud of my self..... When I started this journey of Dialysis   I was over whelm to say the least.....  this has been a big deal.... in my life....   I tackled it and  I was scared.......  but I did it.....    So   I can say like many        IF I CAN DO IT      ANYONE   CAN  DO IT........ 

    Its everyone here and all the information that I have received that made this possible for me..... like others to follow...... this place is wonderfull......   

     We Love IHD      and     Nxstage.......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
kristina
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« Reply #13 on: February 13, 2010, 01:34:36 AM »

I am very happy for you, tyefly!

You tackled it, you approached it & now you succeed with it!

Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cariad
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What's past is prologue
« Reply #14 on: February 13, 2010, 02:56:19 PM »
Well done, tyefly! You should be proud - we're certainly proud of you. :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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