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Author Topic: Remind Me...  (Read 3220 times)
kellyt
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« on: December 21, 2009, 09:54:14 PM »
Is it the Prograf or the Cellcept that causes your hair to fall out and be yucky?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #1 on: December 21, 2009, 10:19:26 PM »
Prograf according to their pamphlet and other readings

CellCept is more GI issues
« Last Edit: December 22, 2009, 02:06:16 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #2 on: December 21, 2009, 10:23:55 PM »
Oh good.  I'm probably going to starting my Cellcept again pretty soon and I didn't want to go through the hair loss again.  Although, I'm sure he'll start me back at the dose I was on when I was told to stop it.  Or at least I hope he will.

Can you believe I have my surgery follow-up appointment on Thursday, a.k.a. Christmas Eve, morning?  Lab tomorrow.  F/U Thursday.  ugh.
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #3 on: December 21, 2009, 10:41:10 PM »
Been there, done that except it was Christmas day and after labs I was admitted on first time out post transplant.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
draven
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« Reply #4 on: December 22, 2009, 11:35:22 AM »
Hi Kellyt

when i went of prograf and switched to certican, my hair stopped falling out and my lips stopped getting all dry and cracked,
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Chris
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« Reply #5 on: December 22, 2009, 02:08:01 PM »
Anyone know about certican in the US?

Haven't seen or heard of that one here. Is it a steriod draven?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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« Reply #6 on: December 22, 2009, 02:13:07 PM »
Yeah, something that makes my hair grow back would be good!  Volumizing mousse only can do so much. . . .
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kellyt
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« Reply #7 on: December 22, 2009, 08:33:33 PM »
Hey Draven!   I'm on 2 mg of Prograf twice a day now and I'm not having any side effects anymore.  Thank goodness.  I, too, have never heard of Certican.  I'll have to ask about that.

Thanks!
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
draven
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Posts: 186
« Reply #8 on: December 23, 2009, 03:08:02 AM »
certican is a immunosuppresent, i switched from prograf to certican, because of prograf toxicity.
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Wattle
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« Reply #9 on: December 23, 2009, 03:30:06 PM »
Yep....... I am now scared to touch or wash my hair. It is still falling out everytime I touch it!!

Maybe I should ask Santa for a wig   :stressed;

I am on 1mg twice a day. I too have never heard of Certican. Does it have any other names Draven?
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Chris
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« Reply #10 on: December 23, 2009, 04:28:54 PM »
This is what I found so far on the US web search:
Another name, everolimus
It was in the FDA approval process reported in an Article from Aug 2004 at: http://www.medicalnewstoday.com/articles/12657.php

Novartis Pharma AG has received an "approvable" letter from the U.S. Food and Drug Administration (FDA) for Certican (everolimus) in combination with Neoral (cyclosporine, USP) MODIFIED, for the prevention of rejection episodes following heart or kidney transplantation.


However, I haven't found if this is a steroid free medication or not and no current news. All articles on Google are from 2004 on the first page for the search of the drug.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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