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Author Topic: Good and Positive Thoughts Needed  (Read 2986 times)
kellyt
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« on: December 29, 2009, 10:11:42 AM »
Okay, I got my stint out (again) this morning.  We're going to do another creatinine level next week (currently I'm at 1.31 - upon discharge from surgery on the 17th I was 1.5, but it was thought to be due to dehydration, so I am down.  Since transplant I've been staying around 1.1 - 1.2), and follow-up with my post-transplant doctor in 2 weeks.  If creatinine stays down I will have a follow-up with the Urologist who removed the stint in 6 weeks.  What we're hoping for is that my ureter has opened up enough so that I no longer require the stint.  To be more specific, hoping the "stricture" is gone and that urine runs through that sucker fast and often.    :pray;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #1 on: December 29, 2009, 10:12:49 AM »
Got my fingers crossed for you!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Darthvadar
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« Reply #2 on: December 29, 2009, 10:28:09 AM »
Fingers, Toes, and everything else crossable crossed for you!...

Very best of luck.... :grouphug;

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
fc2821
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« Reply #3 on: December 29, 2009, 10:45:41 AM »
 :bestwishes; and will  :pray; all goes well for you.
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In center hemo dialysis since Feb 14, 2007. 

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paris
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« Reply #4 on: December 29, 2009, 10:54:14 AM »
Lots of prayers heading to Texas.  We want smooth sailing from here on.   Love you   :cuddle;
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okarol
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« Reply #5 on: December 29, 2009, 02:27:25 PM »

 :bestwishes; Hope it all works now Kelly!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #6 on: December 29, 2009, 02:51:54 PM »
Beat of luck to you, Kelly.
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Galvo
susan parry
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« Reply #7 on: December 29, 2009, 03:08:16 PM »
you are definately in my thoughts.  i have received alot of useful information from you and wish you well.
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PKD
On the list 7/23/09
deceased donor transplant 8/5/09
monrein
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« Reply #8 on: December 29, 2009, 03:48:44 PM »
Really, really hoping for an end to the stents Kelly.  One is enough and for as short a time as possible.  I was amazed by how long the original one put in during the transplant was. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #9 on: December 29, 2009, 04:54:55 PM »
Thanks everyone.  Actually, my original stent came out in Dec 2008 or Jan of 2009, only a few months following transplant.  Is that considered long in Canada, Monrein?

My 2nd stent was placed in early Oct and removed during my surgery on the 16th of this month.  The stent that was placed during that surgery came out today.  I sure hope I'm done with the stents.   :puke;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Rerun
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« Reply #10 on: December 29, 2009, 05:16:11 PM »
Hope all is well.

                  :flower;
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Jean
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« Reply #11 on: December 29, 2009, 06:39:05 PM »
Sure hope everything goes well for you Kelly. You are overdue for it.   :grouphug;
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One day at a time, thats all I can do.
willowtreewren
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My two beautifull granddaughters

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« Reply #12 on: December 29, 2009, 07:13:26 PM »
Thinking of you, Kelly. I hope your stint with stents is OVER!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #13 on: December 30, 2009, 09:34:02 AM »
OMG I had the absolutel worst bladder spasms last night that I have ever had.  So painful.  It felt like someone had my bladder in their hands and they were squeezing it.  Today is much better, but then again I got up first thing and took some Tylenol.    Man that was a strange and painful feeling.   :stressed;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

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« Reply #14 on: December 30, 2009, 10:51:48 AM »
 :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #15 on: December 30, 2009, 12:43:23 PM »
Quote from: kellyt on December 30, 2009, 09:34:02 AM
OMG I had the absolutel worst bladder spasms last night that I have ever had.  So painful.  It felt like someone had my bladder in their hands and they were squeezing it.  Today is much better, but then again I got up first thing and took some Tylenol.    Man that was a strange and painful feeling.   :stressed;

I had that for about 12 hours after they removed my stent and it's a really weird (and not in a good way weird) feeling.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cariad
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What's past is prologue
« Reply #16 on: January 01, 2010, 05:16:10 PM »
I've been sending positive thoughts your way, Kelly, just forgot to let you know.  :oops;

You've been through enough - time to get a much deserved break and get back to enjoying your post-transplant life. Good luck.  :bestwishes;  :flower;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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