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Author Topic: I think I just made history  (Read 4009 times)
Adam_W
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Me with Baron von Fresenius
« on: November 13, 2009, 03:58:05 PM »
I just got back from a National Kidney Foundation convention here in Indiana, and I actually dialyzed on stage with my NxStage! There were about 50 doctors, nurses, dietitians, etc. watching. My treatment was part of a presentation on the benefits of short daily home dialysis. Every one saw the machine, and knew there would be a demonstration with it, but they were shocked when they were told that I was going to dialyze myself right there. As far as I know, no one has ever done an actual dialysis treatment DURING a major convention. Even though I'm extremely tired from being there for the entire day long convention, I am so glad I had this opportunity to share this type of dialysis with so many dialysis professionals, most of whom had never seen it done. I actually felt honoured to be the one who was asked to do it, and I'll gladly do it again. Now I think I'm going to collapse and sleep for about a day and a half.  :waving;

Adam 
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Jean
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« Reply #1 on: November 13, 2009, 04:02:42 PM »
Well, how cool is that???? We have a star on IHD. Glad you are a good patient so that others could watch.
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One day at a time, thats all I can do.
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: November 13, 2009, 04:05:33 PM »
A big, big congratulations!  :cheer: :cheer:
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #3 on: November 13, 2009, 04:33:18 PM »
That is totally awesome!!! Good for you!! :flower; :2thumbsup;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
monrein
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Might as well smile
« Reply #4 on: November 13, 2009, 04:34:05 PM »
Fantastic Adam.  You're a great Poster Boy.   :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #5 on: November 13, 2009, 05:22:24 PM »
 :bandance; woo hoo, really great Adam!  :bandance;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Romona
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« Reply #6 on: November 13, 2009, 07:39:02 PM »
 :clap; Way to go!
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Zach
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"Still crazy after all these years."
« Reply #7 on: November 13, 2009, 08:10:16 PM »
Excellent!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Melissa
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« Reply #8 on: November 13, 2009, 10:14:05 PM »
very cool!  so glad you did this.
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Bill Peckham
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WWW
« Reply #9 on: November 14, 2009, 10:10:45 AM »
Nice. Are there pictures?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
st789
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« Reply #10 on: November 14, 2009, 10:16:04 AM »
Nice, pictures would be speechless...

Way to go.
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jbeany
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Cattitude
« Reply #11 on: November 14, 2009, 05:07:51 PM »
 :bandance;  Very cool!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: November 14, 2009, 05:28:51 PM »
 :2thumbsup; Good idea!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #13 on: November 14, 2009, 07:33:59 PM »
 :clap; :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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