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Author Topic: Fantastic News!!!  (Read 3489 times)
Brianna!
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I met adam lambert for my make a wish!

« on: October 15, 2009, 10:52:21 PM »

I have to have something done to get my bladder(I have a mild form of spina bifida) "fixed" before they're put me as active on the list. There were four options. one, do nothing. two, take medicine. three, have botox injected, so my bladder holds more, or something. and four-have major surgery on my bladder.

They don't think the medicine would work, and they would rather not do the major surgery. So they said I should shoot for the botox injections. But the problem is that insurance rejects like 95% percent of claims. And they won't let me pay out of pocket, because it's 7000 dollars a treatment, and I would need it done every 3 or 6 months (I don't remember how often) if it works.

Well, we just got the call today, and the insurance will cover it!!!  :yahoo; :yahoo; I have to get the first one done before december 1st though. I'm going to tell my center tomorrow when I go for dialysis!

fingers crossed the injections will work!
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zona
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« Reply #1 on: October 15, 2009, 11:12:43 PM »

Brianna, that is very good news! Hope everything goes well for you! I am waiting to hear from the transplant team here at my hospital about my referral for a transplant. I'm not on the list yet,because with my insurance there was a waiting period before they would pay.I wish you the best of luck!
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zona  diagnosed with Igan 1993
         pre-dialysis gfr13% listed for transplant March 2010 Received transplant from deceased son August 2013. My son my hero.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: October 15, 2009, 11:29:12 PM »

 :yahoo; :clap; Great news!  Of course you are going to keep us updated :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Brianna!
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I met adam lambert for my make a wish!

« Reply #3 on: October 15, 2009, 11:29:58 PM »

Of course I will keep you guys updated! I just hope this botox works!
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Jean
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« Reply #4 on: October 16, 2009, 12:41:56 AM »

I hope it works for you too, Miss B. ( My grand daughters name is Briana, so everyone shortens it to B)
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One day at a time, thats all I can do.
billybags
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« Reply #5 on: October 16, 2009, 01:04:41 AM »

Brillient, will be keeping fingers crossed for you.
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KICKSTART
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In da House.

« Reply #6 on: October 16, 2009, 01:14:28 AM »

Great to hear some good news ! Its a good job you are not a lot older or you would be saying , while you're at it, how about a bit for my face   :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Rerun
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Going through life tied to a chair!

« Reply #7 on: October 16, 2009, 06:05:30 AM »

Obama has these insurance companies running scared!

                                            :rofl;
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Goofy
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« Reply #8 on: October 16, 2009, 06:10:23 AM »

That is great news and it makes a lot of sense.  Why not try and correct the problem so you at least have a chance at a transplant.  In the long run, I'm sure it would more "cost effective" for the insurance company.  Instead of paying for dialysis the rest of your life, you now at least have a chance for a transplant.

I don't know if you lost hope of ever getting a transplant, but now there is a light at the end of tunnel.  Best of luck to you!!
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Neo
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Dont let dialysis stop you...

« Reply #9 on: October 16, 2009, 08:33:35 AM »

Congrats!!! Dealing with insurance/medicare can be incredibly frustrating.. im happy for you.. :2thumbsup;
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #10 on: October 16, 2009, 08:41:59 AM »

Brianna.......  good for you .......  I am sure all will turn out well.....   You have had some problems with your fistula  and sounds like you have those resolved....and this will be resolved to...... go get that Transplant...........     
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #11 on: October 16, 2009, 10:17:53 AM »

I went through a similar situation this summer with the insurance company.  It took awhile, but they did approve the treatments I was looking for.  It helped when I talked to a real person myself.   I am so glad for your news.   :2thumbsup;    We all like to hear the positive things that are happening  :yahoo;   Keep us updated and good luck.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #12 on: October 16, 2009, 03:30:06 PM »

Keeping everything crossed that all goes well for you and also that the transplant will come along.   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #13 on: October 16, 2009, 07:49:55 PM »


Our daughter had the surgery to make her bladder bigger (so it would have more volume and less pressure) and it worked out great. She has a non-neurogenic neurogenic bladder (meaning it works like a bladder in someone with spinal injuries.) They required she get this surgery to be eligible for a transplant, as her bladder would have damaged a new kidney. She has to self-cath 4 times a day but she has adapted to that, and it's all worked out well.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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