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Author Topic: helping each other  (Read 4653 times)
lodisweetthing
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Hello,My husband is on home dialysis,,or pd
« on: June 13, 2009, 10:49:35 PM »
just wondering why no one had set up  a way to know others in the same town,,like a support group.. when someone is low you can visit or if a caregiver is ill someone steps in for a day things that this we all use similar equip and wouldnt need so much training
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Hugs Rach
Jean
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« Reply #1 on: June 13, 2009, 11:30:22 PM »
Good idea. there are some groups in Southern Calif, but the closest one to me looks like a social group and fundraising group, and its about a hour and a half there. Nothing in Riverside that I know of. I guess a lot ofpeople make friends in center. This is one great website, and so are the people who post here.
Did you try searching yahoo groups?
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One day at a time, thats all I can do.
Yvonne
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Yvonne
« Reply #2 on: June 13, 2009, 11:37:59 PM »
 :ukflag; As you can see I am in the UK and carer to my husband John, coming up for three years now. We had only just moved to this town 2 months before John was taken ill with acute renal failure. In those 3 years I have more or less managed on my own with no friends down here.  Now last week our little village opened up a drop in shop for Carers, I went in and found out more about it and apparently they have been about for years, we have a telephone number to ring day or night, to talk or ask someone to sit with you (not medical)
What I am saying is maybe you could start one up, I wish I had known about our one 3 years ago, maybe I would not be so grey :rofl;
Yvonne the wife
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
kitkatz
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« Reply #3 on: June 14, 2009, 11:38:29 AM »
Check RSNhope.org if you are in United States. They have a network of people you can call.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #4 on: June 14, 2009, 11:55:58 AM »
Brilliant idea, Lodi!...

Don't think that there are many IHD members in my part of the world (Ireland), though... I WOULD be nice to be able to meet, chat, and just 'be there' for others, and have them be there for me when need be!... I'm caring for my mum, and don't have family support...

Hi Yvonne... Hope John's doing well...

Love to all...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #5 on: June 14, 2009, 03:13:36 PM »
Darth, just by being here you contribute to this board daily.  I appreciate your input. You have  unique way of seeing things and a great sense of humor!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #6 on: June 14, 2009, 03:51:19 PM »
Hi KK....

Thanks for that... You've no idea how much that means to me...

Great to see Garfield looking as 'Handsome' as ever!!!... He's a mog and a half (or two halves, but we won't mention waistlines... The steroids have given me the body of a God... BUDDA!!!!)...  :rofl;...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
aharris2
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« Reply #7 on: June 24, 2009, 09:14:19 AM »
Quote from: Darthvadar on June 14, 2009, 03:51:19 PM
...but we won't mention waistlines... The steroids have given me the body of a God... BUDDA!!!!)...
But Darth, the black outfit hides it well!

Whaddaya mean not many IHDers in your part of the world (Ireland)??? Aren't you the emissary/ambassador? Get to work you slacker you!!!
 :Kit n Stik; Where's the "whip" icon? we need a "whip" icon!!!
Darth, You know I'm just messin' with ya...  :waving;
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Rest in peace my dear brother...
Darthvadar
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« Reply #8 on: June 24, 2009, 12:52:24 PM »
Quote from: aharris2 on June 24, 2009, 09:14:19 AM
Quote from: Darthvadar on June 14, 2009, 03:51:19 PM
...but we won't mention waistlines... The steroids have given me the body of a God... BUDDA!!!!)...
But Darth, the black outfit hides it well!

Whaddaya mean not many IHDers in your part of the world (Ireland)??? Aren't you the emissary/ambassador? Get to work you slacker you!!!
 :Kit n Stik; Where's the "whip" icon? we need a "whip" icon!!!
Darth, You know I'm just messin' with ya...  :waving;



That's part of the reason for the black, A... And the fact that I always look SO sweet and non threatening!!!!.... Honestly those steroids are a nuisence... When I die, they'll send the garage around to collect the spare tyres!!!!....

And yes Boss... I'll get right back to work... Anything you say... Flipping slavedriver!!!!....  ;D

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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« Reply #9 on: June 24, 2009, 04:52:30 PM »
Quote from: Darthvadar on June 14, 2009, 03:51:19 PM

The steroids have given me the body of a God... BUDDA!!!!)...  :rofl;...


 :rofl;  :rofl;  :rofl; LMAO - that's funny!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Darthvadar
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« Reply #10 on: June 25, 2009, 08:22:47 AM »
Quote from: okarol on June 24, 2009, 04:52:30 PM
Quote from: Darthvadar on June 14, 2009, 03:51:19 PM

The steroids have given me the body of a God... BUDDA!!!!)...  :rofl;...


 :rofl;  :rofl;  :rofl; LMAO - that's funny!

Hi Karol...

Thing is, it's only funny because it's TRUE!... And we CAN laugh about it, because we're licensed to!!!...

I've facial hair due to taking 60mgs of Prednisilone a day, most days... I told Mum that the steroids were having awful side effects... She replied, and I quote... "Oh for Goodness sake... Will you stop complaining, and comb your face???"... Hmmmmmmm!!!!.... Remind me not to look for any sympathy!!!!!....  ;D

Love to all...

Darth....
« Last Edit: June 25, 2009, 08:24:38 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
lodisweetthing
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Hello,My husband is on home dialysis,,or pd
« Reply #11 on: July 06, 2009, 06:16:25 PM »
 :rofl;  :sarcasm; funny funny sending a comb or clippers which ever you want
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Hugs Rach
Darthvadar
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« Reply #12 on: July 07, 2009, 01:00:37 AM »
Quote from: lodisweetthing on July 06, 2009, 06:16:25 PM
:rofl;  :sarcasm; funny funny sending a comb or clippers which ever you want

Hedge Trimmer might be more appropriate, Lodi...  ;D

Oh, and send extra blades... I've a beard that Osama Bin Laden would be proud of... And as for my moustache... Who needs a broom... Just run my upper lip over the floor... Sorted!...  :rofl;

Love,

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
texasstyle
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« Reply #13 on: October 07, 2009, 08:06:27 AM »
 My husband drives in with our friend/neighbor to the same dialysis unit so I know the wife pretty well. She seems to be the only one I can discuss things with who understands this all. There is no support group in my area that I know of. I feel like where ever you can get some support, grab it. Our friend is elderly so I help them out when ever I can as I am able and much younger (44). Sometimes it feels like this is all up to me but yes, that would be great having a pool of people to help each other out. I guess an idea might even be to get some contacts with the caregivers from patients at a dialysis unit. Maybe just start off with some phone numbers. If on home hemo, maybe find out through the company(?) if there is anyone else near you. Sometimes I wish my husband's daughter would come by just see him from time to time. He always goes there. It makes me feel even more so that this is on me. His sister is a great help when needed I have to say.
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caregiver to husband using in-center dialysis 4 years
billybags
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« Reply #14 on: October 09, 2009, 01:46:39 AM »
That sounds a really good idea.
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