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Author Topic: Ooooo my poor head !  (Read 2710 times)
KICKSTART
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« on: September 08, 2009, 06:51:28 AM »

I had to come off an hour early today ..migraine or what ! I have had a few bad heads so far but nothing like today , i couldnt even look at people, i had to sheild my eyes. I dont think its dialysis though ! ,its the bright lights , also we have our tvs mounted to the ceiling so you are constantly staring upwards and into the bright lights if you want to watch tv. I made the mistake of watching tv the first time but now i dont, but i still cant stand the bright lights in the unit , the only thing i can think of is getting some sunglasses ? as they dont turn the lights off. Boy do i feel sick  :puke;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
willowtreewren
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« Reply #1 on: September 08, 2009, 07:04:01 AM »

 :grouphug; :grouphug;

Migraines are just awful. I hope the sunglasses help.

Aleta
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #2 on: September 08, 2009, 09:48:05 AM »

For 6 months I was on hemo before going back to PD, and like you I got nasty headaches.  I began wearing my sunglasses inside and the headaches went away.  Good luck!
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d-man
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« Reply #3 on: September 08, 2009, 09:56:15 AM »

I get them some times but it's form high blood pressure  for me. My neck kills me if I try to watch the tv but we just go the net at my clinic so I just use hulu. good luck I hope the sunglasses work
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RichardMEL
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« Reply #4 on: September 08, 2009, 06:45:36 PM »

This is one reason I take my own laptop in - I can watch what *I* want and I'm not staring up at the bloody TV with the fluro lights in the way.

You could try an eye mask also? might help you sleep a little?
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #5 on: September 08, 2009, 06:49:06 PM »

Yes, try some sunglasses.
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« Reply #6 on: September 08, 2009, 07:04:29 PM »

I bought a portable DVD player and joined Blockbuster.com's mail order DVD's. 

I used to get a headaches from the lights and just holding my head in the same place for 4 hours.  Hope you feel better! 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
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« Reply #7 on: September 08, 2009, 08:18:10 PM »

     Can you guys that bring your laptops to D  do they let you plug in ... or do you have to just use your batteries......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

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RichardMEL
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« Reply #8 on: September 09, 2009, 12:12:46 AM »

I plug mine in.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
RichardMEL
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« Reply #9 on: September 09, 2009, 12:14:20 AM »

Actually it was pretty funny - one day I had my laptop and one of the nurses came and asked if she could watch a DVD she had to watch for her classes. Turns out it was a tutorial on the history of dialysis. I actually enjoyed it. I don't think she enjoyed it much because I kept making rude comnents about the "sausage skin" dialyser of the 1940's  :rofl;

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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« Reply #10 on: September 09, 2009, 01:05:29 AM »

Thanks guys , we do have dvd players and a laptop at the unit! (and being the youngest there i seem to be the only one that can use them  :rofl;) But the lights still get me , they are right over the beds so you just cant avoid them. I still have the migraine today even after loads of tablets , so im going to go armed with sunglasses  and see if that helps.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #11 on: September 09, 2009, 01:09:00 AM »

When I did haemo I plugged mine in too.  But they've moved to a new unit so I don't know how it works there now.  They'd better have wifi or i'm not shifting to haemo!  Ever ha ha.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #12 on: September 09, 2009, 03:35:43 AM »

Hope the sunglasses help  :cuddle;
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billybags
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« Reply #13 on: September 09, 2009, 08:27:30 AM »

Kickstart, stop watching the bloo**y tele, take a book or an mp3 player, ok with sunglasses on. So sit there, sunglasses on, book on lap, mp3 player plugged in and sing your heart out. Dont forget the paracetamol. :yahoo;
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KICKSTART
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« Reply #14 on: September 09, 2009, 11:12:12 AM »

billybags .. i only watched tv once ! Ive been out and bought a Nintendo (big kid!) or do i fancy braintraining  :rofl;  Its just the lights set me off, just being in that room , anyway got sunglasses for tomorrow so fingers crossed !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
billybags
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« Reply #15 on: September 09, 2009, 11:36:22 AM »

Try braintraining, only kidding. If you are up at 4-30 in a morning I would try sleeping, Alan is also up early at 5-30 and we only live a 10 minute drive from unit. They pick him up at all times. A four hour "work out" normally takes over 6 hours.  :Kit n Stik;
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thegrammalady
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« Reply #16 on: September 09, 2009, 01:06:50 PM »

     Can you guys that bring your laptops to D  do they let you plug in ... or do you have to just use your batteries......

when i take a lap top they let me plug it it, but then i'm on nocturnal and we don't always follow the rules, the night nurse pretty much does what she wants and she's very good to the patients. we have a guy who uses a dvd player and i haven't noticed any cords so i think he runs on batteries.
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KICKSTART
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« Reply #17 on: September 09, 2009, 01:09:39 PM »

Yes its around dinnertime when i get home ! Trouble is i cant sleep through dialysis, no matter how i try ! (to much noise!) Anyway ive phoned the unit tonight to see if i can go in what we call 'the snug ' because i still have the remains of the migraine today. Its a small side room as opposed to being in the main area , so that way i can have the lights off for most of the time (there is a window, so at least its natural light) however i dont know how long they will let me use it for , there is no priorty over who goes in there so maybe they will be sympathetic and let me go in there long term? and the tv is on the wall !  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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