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Author Topic: Introducing myself....Nan!  (Read 3694 times)
Nan
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« on: October 26, 2006, 07:27:45 PM »
Hello fellow friends, my name is Nan...I am 56yrs old and live in Minneapolis Minnesota. I was diagnosed with Polycystic Kidney disease in 1993 and truly believed that I would die of a car crash before I had any kidney problems. But in May of 2006, I started getting so tired, that I spent like 18 hours in bed a day sleeping! Finding out from my doctor that my creatinine level had gone to 6.4.....hence...the exhaustion!  Ended up in the hospital for a surgery for a catheter and started dialysis on June 1...2006.  I have a incredible surrounding of family and friends...and seven amazing grandchildren, all of my family lives within blocks of me, so we gather together almost daily. I am on the National List for a transplant thru the University of Minnesota Hospital, where they did the first kidney transplant and continue to do them at a high rate. I am still kinda in shock over being in dialysis and having kidney failure.  I sit in my center and wonder what the heck I am doing in this "Frankenstein Laboratory"?!  I can't help but feel that dialysis has taken over my life.....everything is planned "around" it.
When I look at the pictures of the members of this site, I am amazed at how young everyone is....at my center, I am surrounded by the elderly. I am thrilled to find this site, I have told many others about it as I feel it is a great way to network our shared lives with.  I look forward to sharing our stories together, I know I will gain more information and understanding from you, my fellow friends, than anywhere else!  So glad to be aboard!
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No matter how your heart is grieving....as long as you keep believing, the dream that you wish will come true!
Diagnosed with PKD in 1994
Started HEMO dialysis June 2006
Started Home Dialysis on cycler February 2007
Had Live donor transplant February 2008
Sluff
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« Reply #1 on: October 26, 2006, 07:29:26 PM »
 :welcomesign;  Nan
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Black
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« Reply #2 on: October 26, 2006, 08:12:47 PM »
:welcomesign;  My husband has an uncle who owns a small farm about 45 minutes north of you.  We went to the Fair in St Paul with them a couple of times -- wow, that place is huge.

Glad to have you here.  You will love this group -- great source of support and information.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Zach
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"Still crazy after all these years."
« Reply #3 on: October 26, 2006, 09:22:25 PM »
Welcome Nan!  Looking forward to your posts.       ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: October 26, 2006, 10:47:36 PM »
 :welcomesign; to our community.  It is great to have you here.  It is especially great for me to have someone my age on board.  All of these young-uns here!  Were you born in 1950, as I was?  A friend of mine said that 1950 was the last year for good people!!
This is indeed the place to be.  I cannot begin to tell you how I was helped by this site, which I found just before I started dialysis.  So, read the posts, ask some questions of your own.  Please don't be just a lurker - let us hear from you, and often!
Welcome again!  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
anja
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« Reply #5 on: October 27, 2006, 12:28:33 AM »
Welcome , Nan, from a fellow circa-1950...  Glad to have you join us!  I have been on PD since June 2005. Take Care.  Anja
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Joe Paul
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« Reply #6 on: October 27, 2006, 01:50:36 AM »
Welcome Nan, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Rerun
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Going through life tied to a chair!
« Reply #7 on: October 27, 2006, 03:11:34 AM »
Hi Nan and welcome to our site.  You will find a lot of information here.  First of all I don't know WHAT doctor told you the first kidney transplant was performed in Minnesota!  I believe it was in 1954 in Boston on the Herrick identical twins.  Lots to read here, so sit back and have fun.  Don't be discouraged, I too am in a clinic were they are all old.  It can be depressing.  I guess it would be more depressing to see all young people having to go through this with me.

 :welcomesign;
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Ginger
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« Reply #8 on: October 27, 2006, 09:13:58 AM »
Welcome Nan from another fellow TwinCitian. I have been on PD since Aug 2004. Almost had a transplant in July of this year but have no room for one so am now on hold on the list until I have at least one of my very large PKD kidneys removed. You will find this site very interesting and informative.
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Nan
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« Reply #9 on: October 27, 2006, 10:07:13 AM »
Hey Ginger.....I live in southwest Minneapolis ....right  near Washburn High sch. Are you in Mpls or St Paul?....are you going thru the University of Minnesota?.....who is your transplant coordinator?  Why did they not know "before" that your PK's were too large to handle anything else....we need to "network" girl!
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No matter how your heart is grieving....as long as you keep believing, the dream that you wish will come true!
Diagnosed with PKD in 1994
Started HEMO dialysis June 2006
Started Home Dialysis on cycler February 2007
Had Live donor transplant February 2008
mallory
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« Reply #10 on: October 27, 2006, 12:41:18 PM »
Welcome, Nan, good to have you here.  You'll find lot's of good information and supportive people.  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Judy
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« Reply #11 on: October 27, 2006, 01:52:41 PM »
Welcome to this great community Nan  :welcomesign;
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goofynina
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He is the love of my life......
« Reply #12 on: October 27, 2006, 02:07:26 PM »
Hi Nan,  just me, li'l ol' Goofynina wishing you a warm Welcome to our wonderful website/support group.  Looking forward to hearing more from you. ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angieskidney
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« Reply #13 on: October 29, 2006, 03:06:05 AM »
Welcome Nan! I've been to Minnesota and I LOVED it there! I was in St. Paul and Cambridge which is only an hour north of St. Paul!

Welcome to this site!  :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Rerun
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Going through life tied to a chair!
« Reply #14 on: October 30, 2006, 07:14:28 PM »
By the way Nan, I know Dan Munson, coach for the Minnesota Gophers........  Actually I know his wife Darci.
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Sara
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« Reply #15 on: October 30, 2006, 07:20:25 PM »
Welcome, Nan.  We are glad to have you here.   :)
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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