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Author Topic: Matching Donors Online????  (Read 2746 times)
willowtreewren
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My two beautifull granddaughters

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« on: September 09, 2009, 07:28:43 AM »

I read somewhere about registering with Matching Donors Online. When I looked at it there was a very long agreement of terms that seemed to intimate that there was a fee for registering, but I could not find any direct reference to the fee.

Have any of you registered? And if so, what was the fee if any?

Thanks.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
marti824
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« Reply #1 on: September 09, 2009, 07:40:20 AM »

I am registered with Matchingdonor.com.  The fee is $595.00, payable at $100.00 per month.  you put your profile on line and then you can search for people that match.  with your profile being out there, the potential donors can search for and contact you.  I have actually ben contacted by two different people. one was not a blood match and the other, I am still talking to, she is willing to donate her kidney to me.  pray that it works.  good luck with your search.
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Chris
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« Reply #2 on: September 09, 2009, 11:56:16 AM »

I forgot what Okarol used where she found a donor for Jenna. Hopefully she will chime in,  but I know her story is posted on here. Think it's one of the links one her post.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: September 09, 2009, 12:44:30 PM »

I know that Karol posted with Living Donors Online. It is free. I don't know if she also listed with matching donors.

Thanks, though.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #4 on: September 09, 2009, 01:40:09 PM »

I have never used Matching Donors because each transplant hospital Jenna was listed with made it clear that they would not accept a donor from that website. I think that may policy have changed for some hospitals - but you need to be sure before you pay the fee.
We met Jenna's donor on livingdonorsonline.org in the "Looking for" section. You can read more here http://ihatedialysis.com/forum/index.php?topic=13917.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #5 on: September 09, 2009, 09:43:15 PM »

The fee is $595.00, payable at $100.00 per month. 

Pricey fee. Someone is making money.

But I suppose if it finds you a donor, then it is worth it.
Australian hospitals wouldn't agree to use the donors. You have to have known the donor for at least a year and have a proven friendship.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Chris
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« Reply #6 on: September 09, 2009, 09:45:40 PM »

The fee is $595.00, payable at $100.00 per month. 

Pricey fee. Someone is making money.

But I suppose if it finds you a donor, then it is worth it.
Australian hospitals wouldn't agree to use the donors. You have to have known the donor for at least a year and have a proven friendship.

I can understand that, but how do you prove friendship?
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
skyedogrocks
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Rob showing off his pot of gold!

« Reply #7 on: September 10, 2009, 06:02:17 AM »

Rob found his donor on matchingdonors.com.  This is a great place that really helps.  You can actually talk to the CEO of this company and he has loads of experience and compassion, as his dad died of kidney disease. 

THe price is steep, however, if you are unable to afford this, they can work with you.  Don't feel that this isn't an option for you, they are incredible  This price includes airfare if needed.  We have spoken to the CEO many times, he helped us with Rob's profile and finding some donors.  In the end, it was Rob's donor that contacted him.

I can't say anything bad about this place, they really are great.  You do however, have to watch out for hospitals that don't support this kind of service.  We had to switch hospitals once because the original didn't support this.  Totally sucks, but thankfully many hospitals do.

Feel free to ask any questions or call the company itself!

Good luck!
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
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