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Author Topic: Normal people  (Read 4979 times)
Quickfeet
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Mack Potato
« on: February 08, 2010, 10:01:20 PM »
I love the people I work with. They are very understanding of my situation. But too often they forget or don't fully understand my limitations. I asked my boss the other day if I could wear sneakers to work instead of dress shoes because my doctor thought my hip might be cracked. The very next day she had me bring in shopping carts that were buried in snow. The pain was horrible, but it had to be done. One of my other bosses has a tendency to call me and have me meet him some where just so we can chit chat. Even though by now he should know how much it hurts to walk so far, he doesn't get it. So I walk from one end of a super store to the other end.

Oh and I am really tired of people asking me if I'm OK. Hell no I'm not OK, I'm dying over here. Or they will say I hope you get better. If I'm in a bad mood, I tell them my disease doesn't get better. On good days i will just smile and say thank you. the other day a coworker told me that he and some other coworkers felt that I seemed much healthier.  :banghead; What part of dengenerative disease don't people get. I only seem better because I'm on strong pain pills and happy pills.

I love normal people for the same reason they frustrate me. They treat me like a normal person. I feel like a real person at work. They ask too much of me, but I love them for it. They don't see me as a disabled person. They see me as a friend and coworker. They don't baby me.
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kellyt
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« Reply #1 on: February 08, 2010, 10:59:38 PM »
Good attitude.   :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #2 on: February 09, 2010, 12:01:15 PM »
  Yes good attitude.  Besides who says you're not normal?  You are just different from them  See what they are missing? Getting to appreciate living more than they do.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
sullidog
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« Reply #3 on: February 09, 2010, 04:08:33 PM »
One thing that gets me is that people who are sicker than me will treat me like I'm as sick as they are. I don't like that at all!
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: February 10, 2010, 01:31:27 AM »
Normal people .... hmmm don't understand the term  :rofl;
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Bub
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« Reply #5 on: February 10, 2010, 04:17:29 PM »
My bosses keep scheduling MANDATORY on the days I have dialysis.  I keep missing the classes and explain, when called upon (as I always am) that I cant miss dialysis.

My fellow employees have likewise been wonderful to me!
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Malibu
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« Reply #6 on: February 10, 2010, 05:50:23 PM »
sullidog I know the feeling........people act like my hubby is going to die soon.  Of course just prior to dialysis I felt it was touch and go.

Bub I think someone at your work is out to get you.  You better watch your  :sir ken;
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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #7 on: February 12, 2010, 12:44:37 PM »
Bub,    Might I suggest the EEOC  1-800-669-4000   or   info@eeoc.gov

U.S. Equal Employment Opportunity Commission
131 M Street, NE
Washington, DC 20507
Phone: (202) 663-4900

   Document everything they do especailly when they mark manditory meetings on your dialysis days and times.   This can be used agaisnt them and in your deffense.    :bestwishes;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
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