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Author Topic: Donor not a match? Here is multi-center paired exchange information  (Read 3111 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: October 28, 2009, 12:51:28 PM »

If you are medically qualified for a transplant, and you have an incompatible living donor or a poorly matched living donor, the National Kidney Registry (NKR) may be able to help you.

The National Kidney Registry works with transplant centers to increase the quality, speed and number of living donor transplants. The NKR allows transplant centers to register donors and recipients directly in to their database and participate in multi-center paired exchanges. Participation delivers the following benefits:
•   Facilitates more living donor transplants by overcoming donor incompatibility.
•   Provides better outcomes for patients by improving the compatibility of donor/recipient matches.
•   Reduces the wait time for a transplants.
•   Saves/ Improves the lives of patients.

The National Kidney Registry is a nonprofit organization registered under the laws of the State of New York. The National Kidney Registry is based out of Long Island, New York and supported by counselors, volunteers and partners around the United States. More information here: http://www.kidneyregistry.org/about_us.php#mission

List of participating centers:

Arizona

Mayo Clinic Hospital Phoenix
Contact: Mira Wozniak, RN, CCTC Phone: 480-342-0924

California

California Pacific Medical Center San Francisco
Contact: Donyale John Phone: 415-600-1718
Sharp Memorial Hospital San Diego
Contact: Tammy Wright Phone: 858-650-5016
Stanford University Medical Center Palo Alto
Contact: Soo Yee, Kong Phone: 650-725-0177
UCLA Medical Center Los Angeles
Contact: Suzanne McGuire Phone: 310-794-0696
UCSF Medical Center San Francisco
Contact: Diana Zographos Phone: 415-353-4543
University of Southern California Los Angeles
Contact: Leeanne Shinn Phone: 323-442-5367

Georgia
Emory University Hospital Atlanta
Contact: Erica Henderson Phone: 404-712-7984

Illinois
Northwestern Memorial Hospital Chicago
Contact: Maria Hendricks Phone: 312-695-4617

Maryland

University of Maryland Baltmore
Contact: Debbie Iacovino, RN Phone: 410-328-7649

Minnesota

University of Minnesota Medical Center Minneapolis
Contact: Catherine Garvey Phone: 612-625-2186

New Jersey
Hackensack University Medical Center Hackensack
Contact: Joan Abrams Phone: 201-996-2613
Newark Beth Israel Medical Center Newark
Contact: Tatiana Alvarez Phone: 973-926-7262
Our Lady of Lourdes Camden
Contact: Donna Collins Phone: 856-796-9373
Robert Woods Johnson New Brunswick
Contact: Margaret Ames Phone: 732-235-6424
Saint Barnabas Medical Center Livingston
Contact: Marie Morgievich Phone: 973-322-2286

New York
Montefiore Medical Center Bronx
Contact: Patricia McDonough Phone: 718-920-4775
Mount Sinai Medical Center New York
Contact: Teresa Rodriguez Phone: 212-659-8086
NYP Columbia New York
Contact: Joan Kelly Phone: 212-305-6469
NYP Cornell New York
Contact: Marian Charlton Phone: 212-746-1742

Ohio
Case Medical Center Cleveland Cleveland
Contact: Pamela Dittoe Phone: 216-844-5674
Ohio State University Medical Center Columbus
Contact: Kim Waugh Phone: 614-293-6744

Pennsylvania
Lankenau Hospital Wynnewood
Contact: Phone:
Pinnacle Health Systems Harrisburg
Contact: Kim Barnett Phone: 717-231-8747
University of Pennsylvania Philadelphia
Contact: Stephanie Neal Phone: 215-662-6200

Texas

Methodist Hospital Houston
Contact: Jennifer Hamilton Phone: (713) 441-5486

Utah
Intermountain Medical Center Murray
Contact: Paula Mark Phone: 801-521-1755
University of Utah Medical Center Salt Lake City
Contact: Paula Mark Phone: 801-521-1755

Virginia

Sentara Norfolk General Hospital Norfolk
Contact: Amy Sokolowski Phone: 757-388-3977
University of Virginia Charlottesville
Contact: Barbara Shephard Phone: 434-924-1207
Virginia Transplant Center Richmond
Contact: Lisa Matthias Phone: 804-289-4941

Washington

University of Washington Seattle
Contact: Kami Sneddon Phone: (206) 598-8134
________________________________________

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #1 on: November 02, 2009, 06:39:45 PM »

I am interested in going this route if my wife is not a match.  She is willing.  However,  I would only do this if the surgeries were done simultaneously. 
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Phraxis
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« Reply #2 on: November 08, 2009, 09:11:49 PM »

It is being done actively in Canada, and the surgeries are done simultaneously.

As a result the clinic has been incredibly busy making people quite happy.
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