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Author Topic: I just wanted to say  (Read 3494 times)
KICKSTART
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In da House.
« on: August 11, 2009, 10:15:31 AM »
Thanks to everyone for all your good wishes , this time tomorrow it should all be over and i will be on the road to Hemo ! I must admit im feeling rather upset tonight , as usual my family are not there for me again. My mums been supportive on the phone but she has something wrong with her hip right now , so of course the rest of the relatives are rallying round her , while im just left to get through this alone. I will draw my strength from all your good vibes and hopefully be back soon ,feeling brighter ..and wittier  :2thumbsup; Take care everyone , catch up with you soon.....  love KICKSTART  xxx
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: August 11, 2009, 10:16:33 AM »
 :cuddle; Hope to hear from you soon! Good luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
David13
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A meow massages the heart.
« Reply #2 on: August 11, 2009, 10:17:25 AM »
Good luck, Kickstart!   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kimcanada
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« Reply #3 on: August 11, 2009, 10:17:46 AM »
KICK, what happened??  Why are you switching??  What did I miss??
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rose1999
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« Reply #4 on: August 11, 2009, 10:26:39 AM »
Your IHD family are here for you  :grouphug;
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maritza0486
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"Pple cant do evrythin but every1 can do somethin"
« Reply #5 on: August 11, 2009, 10:27:12 AM »
Hey we are all here for support and we hope that everything goes well. Don't let the family situation bring you down. You will be ok. Stay positive. :2thumbsup;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
LightLizard
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« Reply #6 on: August 11, 2009, 10:45:00 AM »
all the best for you kickstart. in my experience, family has little to do with blood.
we're all rootin fer ya!
 :cheer: :cheer: :cheer:
 :guitar:
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monrein
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Might as well smile
« Reply #7 on: August 11, 2009, 10:47:28 AM »
Waiting to hear back from you KS and you are most definitely NOT going through this alone.  I'm just hoping that all of us going with you to the hospital don't get in the way of the surgeon trying to do his/her job
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #8 on: August 11, 2009, 08:08:49 PM »
Yes KS it sucks I think because a lot of family members and friends can often feel helpless in terms of knowing what they can do or feeling there is nothing much they can do.. but it sucks when you don't even get people asking after you or wanting to check in. Never fear though - your IHD family loves you and wants to know!!! :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #9 on: August 11, 2009, 11:34:29 PM »
You hang in there Bubba, we are with you in spirit. :grouphug;
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One day at a time, thats all I can do.
Yvonne
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Yvonne
« Reply #10 on: August 12, 2009, 12:03:15 AM »
Thinking of you, hope all goes well,  :grouphug;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Des
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« Reply #11 on: August 12, 2009, 12:08:12 AM »
Hugs from me 2 u.

Hope everything goes well.

We are family! all my brothers and sisters and me........... just singing a song for you.

 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
sico
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wheres my bike gone?
« Reply #12 on: August 12, 2009, 04:06:16 AM »
Good luck Kickstart! I know how you feel going through things alone. I live by myself at the moment and majority of my family is far away.
Stay strong!
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
willowtreewren
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My two beautifull granddaughters

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« Reply #13 on: August 12, 2009, 08:02:24 AM »
 :grouphug; :grouphug; :grouphug;

We are there for you in spirit, Kickstart.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sunny
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Sunny
« Reply #14 on: August 12, 2009, 07:04:39 PM »
Hope it all goes well for you. We are here for you.
You are strong enough to get it done on your own so hold on tight.l
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
jbeany
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Cattitude
« Reply #15 on: August 12, 2009, 07:15:38 PM »
Oh, sorry you had to switch - but I hope it makes you feel better, and hopefully the hemo nurses do better than the ones you had for pd!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
del
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del and willowtreewren meet
« Reply #16 on: August 12, 2009, 07:49:33 PM »
Sorry you have to go through this without your family but hey lots of people here are rooting for you.  We may not be able to be right there with you but our spirits are there. :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #17 on: August 12, 2009, 11:58:29 PM »
How's it going Kick?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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