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Author Topic: My PKD and Kidney Transplant Diary / Blog  (Read 1945 times)
whiskeyfrank
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« on: August 12, 2009, 06:20:49 AM »

Hi all

I have decided to write a blog / diary of my treatment for PKD from my current state of waiting for dialysis and bi lateral (double) kidney removal through to my planned live donation from my mum.

If nothing else I'm using it to keep friends and family in the UK and  Canada in touch with where I am in my treatment and whats happening, how i feel and maybe to help others if they go through a similar thing.

I would love people from this forum to follow me and offer thoughts, your all so supportive and i feel part of a family already.

 I'm not a celebrity so its just my life as its happening, a normal (ish) man from England.

Hope you think its relevant.

Adrian

http://pkddiary.blogspot.com/

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PKD - diagnosed 1986
Fistula added July 2009
Bilateral Nephrectomy Oct 2009
Fistula Failed Oct 2009
HD started Oct 2009
Live donor from mum Jan 4th 2010
mum and me both great

Started a blog on my condition from stable now to Living Donor transplant (hopefully)

My Blog - http://pkddiary.blogspot.com/
monrein
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« Reply #1 on: August 12, 2009, 03:09:29 PM »

It's a really good idea to blog about this so that family and friends, including us, can follow your journey. It's totally relevant to this board.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #2 on: August 12, 2009, 03:10:49 PM »

Good luck with the blog. It is a good way to keep people abreast of your news.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #3 on: August 12, 2009, 11:35:38 PM »

Good job :thumbup;
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One day at a time, thats all I can do.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #4 on: August 12, 2009, 11:37:57 PM »

When I was first diagnosed with cancer I also started a blog.  it's such a great way to let people know what's happening.  It also means you don't have so many well meaning people wanting to know what's happening.  That can be tiring at times.  Good on you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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