BETTY55111
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Posts: 72
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« on: August 17, 2009, 12:16:02 PM » |
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Hello Everyone,
I went in the hospital to have a heart cath the last test before the transplant and they found I had blockage on both valves to
and from my heart. I just had open heart surgery, I am still in ICU but will be moved to a room today.
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willowtreewren
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« Reply #1 on: August 17, 2009, 12:18:03 PM » |
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Oh my goodness, Betty! I'm glad they found this now. Here are  for a speedy recovery! Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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aharris2
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« Reply #2 on: August 17, 2009, 12:21:02 PM » |
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Hi Betty, Posting on IHD from ICU! I am hoping that that is an excellent sign that all went very well. Looking forward to seeing posts from home. Get well soon.
Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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paul.karen
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« Reply #3 on: August 17, 2009, 12:27:25 PM » |
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Phewww
How scary was that i bet.
Glad that you have had that taken care of and are able to type us a little note.
I am due to ahve a heart cath, i hope i dont get such a surprise YIKES.
Prayers to you for a fast recovery.
Get well soon.
Ps. this is my second attempt hopefully it will go through this time around.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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willieandwinnie
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« Reply #4 on: August 17, 2009, 02:09:19 PM » |
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 Oh Betty, how scary is that. Hope you are on the road to recovery and transplant his after all you have been through.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Darthvadar
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« Reply #5 on: August 17, 2009, 02:21:15 PM » |
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Betty,
May you make a very speedy recovery and get that transplant soon...
I'm thinking of, and praying for you...
Love...
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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monrein
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« Reply #6 on: August 17, 2009, 03:07:14 PM » |
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Good thing they found and repaired that but Holy Hannah, what a shock that must have been. Get well soon and keep us updated. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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twirl
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« Reply #7 on: August 17, 2009, 03:08:44 PM » |
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BETTY55111
Jr. Member
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Posts: 72
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« Reply #8 on: August 18, 2009, 06:26:04 PM » |
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I will be going home tomorrow. I am in a room now. Still having some pain and discomfort but feeling better. I am doing my exchanges in my room the nurses here know NOTHING about PD, They are not interested either because not one has come in the room to watch. When I first was put in ICU I could not talk because I was still on the ventilator. I could hear them saying that they were going to put 2 2ml bags in me. I was panicking and going crazy twisting and turning and my hands were tied so that I would not pull the tube out. I kept trying to say one bag. I finally got them to let my sister stay while they did it and she helped them and told them one 2ml bag.I was a crazy woman. I don't know what would have happened and I didn't want to find out. After that I did them all
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mikey07840
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« Reply #9 on: August 18, 2009, 06:50:32 PM » |
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Get well soon... |
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma
• Don't Knock on Death's door; Ring the bell and run away. Death hates that.
• I'm not a complete Idiot -- some parts are missing.
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Hanify
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« Reply #10 on: August 18, 2009, 08:56:28 PM » |
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Wow Betty. Hopefully this will improve your health generally. Maybe you won't feel so bloated?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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Des
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« Reply #11 on: August 18, 2009, 11:26:06 PM » |
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I am glad you are fixed up now.
I hope you feel better soon......
How will this affect your transplant plans?
I am going for an angiogram end August and I am SO scared.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Rerun
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« Reply #12 on: August 19, 2009, 12:36:59 AM » |
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Man oh man! A heart Cath is bad enough let alone what you had to go through. I hope you get a transplant soon. You deserve it.
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george40
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« Reply #13 on: August 20, 2009, 10:04:06 AM » |
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Feel better betty! Get well soon.
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
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BETTY55111
Jr. Member
Offline
Gender:
Posts: 72
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« Reply #14 on: August 30, 2009, 03:08:07 PM » |
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Thanks for all the support and concern. I had the triple bypass on 8/14 so this Friday it will be 3 weeks. I am doing much better although the comeback is not as fast as previous surgeries that I have had.
The transplant hospital called me Friday to say that the transplant will be postponed for 3 months. I almost told him I don't care if I never get it. I was so sick that day. So I am supposed to be better now with the bypass surgery.
I am taking one day at a time.
Betty
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kimcanada
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« Reply #15 on: August 30, 2009, 03:13:02 PM » |
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Good to hear you are on the mend Betty. 3 months will fly by |
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monrein
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« Reply #16 on: August 30, 2009, 03:34:56 PM » |
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Glad you're home Betty. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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