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Author Topic: Hi from Minnesota  (Read 2442 times)
TaylorMN
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« on: August 08, 2009, 09:22:24 AM »
Hello All:

My husband, Del, is 76 years old and was diagnosed with FSGS 18 months ago.  At our Neph appointment this weeks his GFR was 15, so we are getting very close to dialysis.  He is taking a bunch of new drugs (steroids) to try and help and I think they are making things worse.  We are planning to do home hemo dialysis and after reading some of your posts I am sure many of you will be able to answer questions for us. 

Del is retired and I work full time, so finding the time to do home hemo will be a challenge.  But we feel it will be the best for his health and hopefully will have a less restrictive diet.  We have lots to learn. 

Rita
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monrein
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Might as well smile
« Reply #1 on: August 08, 2009, 09:27:32 AM »
Welcome Rita, and by extension, Del.  There is so much to learn and decide about dialysis but this is a great place for answers and support too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #2 on: August 08, 2009, 09:29:01 AM »
Welcome Rita. I am sure you will find all your questions answered here!! We are a very experienced and supportive bunch!

Hoping things work out for the best for you and your hubby!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: August 08, 2009, 09:48:06 AM »
HI, Rita!

Welcome to IHD! This is a great group, a family really.

Lots of information, plenty of support and we even try to have fun!  :clap;

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #4 on: August 08, 2009, 09:53:06 AM »
 :welcomesign; Rita. You have found the right place for information and support. What has your Neph said about home hemo? Have you considered PD? Hope you post often and have Del join. The more the merrier.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: August 08, 2009, 10:01:58 AM »
Welcome to our community, Rita!  And give Del our welcome as well.  This is just the place to be for anyone connected to this renal challenge.  Here you will find lots of information "Information is Power" we say, loads of support and barrels of fun!  In fact this is much more than a website - you will find out that it is a genuine family :grouphug; caring and sharing.
Where I am, the only process offered is in-centre dialysis, so that is the only thing I know about, but we have members here in every conceivable process, so just ask away.  Keep reading, keep asking, and above all, keep posting!





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #6 on: August 08, 2009, 10:03:21 AM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #7 on: August 08, 2009, 08:39:29 PM »
 :welcomesign;
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lola
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I can fly!!!
« Reply #8 on: August 08, 2009, 09:10:28 PM »
 :welcomesign; we are from MN also and my husband does home-hemo
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www.caringbridge.org/visit/ottomachado
Erin8607
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« Reply #9 on: August 08, 2009, 10:00:21 PM »
I'm a newbie  myself, welcome :)

Steroids are nasty little things and can do a lot of harm while they do a lot of good. I was on them for four years and cursed them daily!
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Hating dialysis since April 11, 2001
funnygarcia
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« Reply #10 on: August 08, 2009, 10:53:31 PM »
Hello and welcome.

I'm in MN too (Twin Cities) , my husband uses Nx Stage at home. 
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Yvonne
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Yvonne
« Reply #11 on: August 08, 2009, 11:42:55 PM »
 :ukflag;   :welcomesign;     From Yvonne caring for John who is 73, not yet on dialysis but very ill






Edited - Fixed smiley error; paris, Moderator
« Last Edit: August 09, 2009, 07:18:36 PM by paris » Logged
2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #12 on: August 09, 2009, 05:10:56 PM »
Welcome
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #13 on: August 09, 2009, 07:25:55 PM »
Hi Rita and Del and welcome to IHD.  We are glad you joined us.  Everyone here is very supportive and will answer any question you want to ask.   Sounds like you are becoming very prepared for what is ahead.  There are lots of members doing home hemo and they can be a great help to you.  Looking forward to more of your posts.      :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jean
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« Reply #14 on: August 09, 2009, 11:43:00 PM »
Welcome to IHD and read, read, read and ask questions too.  :welcomesign;
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One day at a time, thats all I can do.
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