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Author Topic: hello new here from Arkansas  (Read 2275 times)
Pstar
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« on: June 22, 2009, 09:40:48 PM »
well lets see i found out i had kidney disease (alport's syndrome) at the age of 8 from having cat scratch fever lucky me that cat scratched me i did pretty well through my teenage years i played football, basketball, and was just a rough country kid then at about 20 everything just started to get bad first i just tried to eat right and take my meds to slow it down but that didn't work so i went for the home pd and i just felt great for about the first year and a half then i got peritonitis(spell check) so i went on hemo for a while wit the catheter and then got back on home pd and about 2 years later they told me my membrane just wasn't working well enough anymore plus i had developed nuropathe(spell check) so i went ahead and got the fistula and trained to use it at home but when the time came it was just to much for me to handle plus i got a hiatus hernia so now i go to the clinic 3 days a week and its working out pretty well so yeah any ?s just ask  :bandance;
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hyperlite
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« Reply #1 on: June 22, 2009, 09:45:36 PM »
not sure if you were joking about the cat scratch fever or not, but Alport syndrome is an x-linked genetic disease...
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #2 on: June 22, 2009, 10:30:21 PM »
Hiya Pstar, nice to meet you
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Joe Paul
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« Reply #3 on: June 23, 2009, 12:43:23 AM »
Welcome Pstar, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #4 on: June 23, 2009, 04:59:15 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #5 on: June 23, 2009, 05:27:13 AM »
 :welcomesign; Pstar. Glad you joined our group.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
aharris2
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Volcan Pacaya, Guatemala
« Reply #6 on: June 23, 2009, 06:03:51 AM »
Hi Pstar, Let's see... 20+1.5+2x100sqr root 81/3x(1/3)x1%= ???
Well, let's just say I've done the math (kitkatz, would you check it please) and you are about 24, 25 based on your intro. How'd I do?

 :welcomesign;

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Romona
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« Reply #7 on: June 23, 2009, 09:09:43 AM »
 :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #8 on: June 23, 2009, 09:45:54 AM »
It sounds like you have had quite a ride Pstar!

Welcome to IHD!

It's a great place for support and information.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: June 23, 2009, 12:56:43 PM »
Welcome aboard.  This is a great place for information and shoulders to cry on!
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Pstar
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« Reply #10 on: June 26, 2009, 01:57:30 PM »
no i wasn't joking about the cat scratch thats really how i found out because i had micro blood in my urine odd huh lol there really wasn't much known about alports back then so my mom didn't know she had passed it along to me, and thanks you guys for welcoming me i needed a place where others understood the stuff we all go through, and yes I'm 25 well fixin to be 25 n about 3 weeks  :bandance;
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