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tee
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« on: May 23, 2009, 03:08:35 PM »
My husband is on dialysis, he was on Hemo, about 3 years ago, and was able to stop for the last 21/2 years.  He really hates it, but had to go back on as he was becoming very ill.  He has been on for about one month now, and this morning the tech infiltrated his fistula, and his arm swelled up.  This is the first time this has happened to him.  We have been icing it all day.
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dwcrawford
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Getting the heck out of town.
« Reply #1 on: May 23, 2009, 03:21:00 PM »
Welcome.  I'm just learning about these things so I have no answers or comments for you other than welcome and I'm sure someone will have a response.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willieandwinnie
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« Reply #2 on: May 23, 2009, 05:29:58 PM »
 :welcomesign; tee. I never let that tech touch my husband again. Ask which tech or nurse has the most experience with new fistula. You'll find lots of information and support here. Tell your husband to also keep his arm elevated along with the ice.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
TeenHatesDialysis
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WWW
« Reply #3 on: May 23, 2009, 09:48:09 PM »
 :welcomesign; tee

Sorry that you and your husband have to go through this. There are definitely awesome techs, nurses and doc and awful techs, nurses and docs. Since your husband is at dialysis 3x per week, you will find out quick who is good with him. There are certain techs and nurses that I will not let touch my daughter. Our insurance is paying $25,000-$30,000 per month for dialysis, demand excellent care!

I am glad that you joined the group, great support and very informative.  :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Rerun
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Going through life tied to a chair!
« Reply #4 on: May 23, 2009, 09:51:14 PM »
Welcome Tee.  I hope there is room for dialysis next time.  It takes a few days for the bruising to decrease. 

Look around this site.  It has lots of support for you and your husband.

                    :welcomesign;
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Joe Paul
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« Reply #5 on: May 24, 2009, 03:10:42 AM »
Welcome Tee, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: May 24, 2009, 05:12:04 AM »
Hi, Tee.

I am a care giver for my husband, too. At the beginning he was infiltrated a couple times. We trained for doing dialysis at home with NxStage and now I am the only one who sticks him. I have never infiltrated him. Of course, he is quick to tell me if he feels the needle it touching the side of the fistula and I adjust it.

I'm glad you found this site. There is a wealth of combined wisdom and knowledge here.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: May 24, 2009, 03:36:51 PM »
 :welcomesign;
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
monrein
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Might as well smile
« Reply #8 on: May 24, 2009, 06:46:00 PM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: May 25, 2009, 04:13:47 PM »
Welcome to our community, Tee!  So glad that concern for your husband brought you to us.  You must also check out our caregivers section where caregivers and loved ones have their say and support each other.  Our founder Epoman was a big advocate for self-cannulation.  I haven't got to the point where i even want to attempt that.
On the lightsided side, we have our classic post by LifeOnHold (she has since passed) where she categorizes dialysis nurses.  Have a look - http://ihatedialysis.com/forum/index.php?topic=66.0
So please keep reading and keep posting.  Particularly, we want to know how your husband's fistula is doing.  Post in the General Discussion and let us know.
Looking forward to hearing from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
MandaMe1986
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« Reply #10 on: May 25, 2009, 06:36:18 PM »
 :waving; :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
G-Ma
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« Reply #11 on: May 26, 2009, 11:57:12 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
David13
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A meow massages the heart.
« Reply #12 on: May 26, 2009, 12:01:26 PM »
Welcome to the site!   :welcomesign;

You will find a great deal of information and support here.  If you don't find the answers for which you are looking, just ask!

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
tee
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« Reply #13 on: June 14, 2009, 03:28:02 PM »
Quote from: bajanne2000 on May 25, 2009, 04:13:47 PM
Welcome to our community, Tee!  So glad that concern for your husband brought you to us.  You must also check out our caregivers section where caregivers and loved ones have their say and support each other.  Our founder Epoman was a big advocate for self-cannulation.  I haven't got to the point where i even want to attempt that.
On the lightsided side, we have our classic post by LifeOnHold (she has since passed) where she categorizes dialysis nurses.  Have a look - http://ihatedialysis.com/forum/index.php?topic=66.0
So please keep reading and keep posting.  Particularly, we want to know how your husband's fistula is doing.  Post in the General Discussion and let us know.
Looking forward to hearing from you.
Bajanne, Moderator

I actually just read this today, and shared with my husband, we had a good laugh.  He has names of people at his center for each of those.  Thank You



EDITED - Fixed quote error - Bajanne, Moderator
« Last Edit: June 14, 2009, 03:58:35 PM by bajanne2000 » Logged
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