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Author Topic: Nice to meet you  (Read 2819 times)
SavannahMaude
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« on: June 09, 2009, 09:43:45 PM »
Hi!  It is nice to meet y'all.  I am the daughter of a pd patient.  My father who is 78 was diagnosed last year with chronic kidney failure after experiencing several years of declining kidney function.  He started pd in November of last year and has been having problems with the cycler.  I am hoping to learn more about other patient's experience with pd- the good, bad and the ugly, as the saying goes. 

 :flower;

Thanks!
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Joe Paul
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« Reply #1 on: June 09, 2009, 11:34:30 PM »
Welcome SavannahMaude, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Romona
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« Reply #2 on: June 10, 2009, 04:00:57 AM »
 :welcomesign;
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marti824
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« Reply #3 on: June 10, 2009, 04:14:20 AM »
I tried the pd for a while, but it didn't work.  the catheter didn't drain properly and i wound up gaining 30 pounds in less than a month. so I had to have the fistula placed and the pd catheter removed.  It didn't work because there was some other membrane in the peritoneal cavity that was stopping it from draining.  The more I thought about it though, hd seems to be better for me.  it's 3 1/2 hours three days a week as opposed to 10 hours every night.  Welcome aboard.
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peleroja
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I have 16 hats, all the same style!
« Reply #4 on: June 10, 2009, 01:51:38 PM »
Welcome aboard.  What types of problems is your father having?  I'm also on the PD cycler.
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cookie2008
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« Reply #5 on: June 10, 2009, 02:05:27 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
MandaMe1986
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« Reply #6 on: June 10, 2009, 02:38:39 PM »
 :waving; :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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Bajanne
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« Reply #7 on: June 10, 2009, 04:18:14 PM »
Welcome to our community, Maude!  Are you from Savannah, Georgia? It's great that concern for your father brought you to our website.  By the way, this is  much more than a website - it is a wonderful caring and sharing family  :grouphug;  Not only is there lots of information, there is also lots of genuine support.  Some of us don't know what we would have done without IHD.  So just keep reading and keep posting.  We need to know how your dad is doing.
Looking forward to hearing from you.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #8 on: June 10, 2009, 04:22:36 PM »
Hi SavannahMaude, welcome to IHD.  I'm also on a cycler so feel free to ask any questions.  There
s always an answer - even if it's not the one you want...watch out for DWCrawford - he's just silly!Lol
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
lodisweetthing
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Hello,My husband is on home dialysis,,or pd
« Reply #9 on: June 14, 2009, 12:29:32 AM »
Quote from: SavannahMaude on June 09, 2009, 09:43:45 PM
Hi!  It is nice to meet y'all.  I am the daughter of a pd patient.  My father who is 78 was diagnosed last year with chronic kidney failure after experiencing several years of declining kidney function.  He started pd in November of last year and has been having problems with the cycler.  I am hoping to learn more about other patient's experience with pd- the good, bad and the ugly, as the saying goes. 

 :flower;

Thanks!
call the company when alarms go off you may need to exchange it,,but something that helps with alarms is to tape your line that comes from the top bag on the top where your casseete attaches so its level ... this helps with the tubing when bag is low from not sucking on the bag to prevent alarm check patient line.. the machine reads there is a clog as well the top bag back half is propped up on clipboard or something this will help too for the end.. feel free to ask i will help if i can..
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Hugs Rach
willowtreewren
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My two beautifull granddaughters

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« Reply #10 on: June 14, 2009, 04:33:31 AM »
Hi, Maude.

Welcome to this family.  :cheer:

You will find all sorts of information and support here. Take your time to read through the threads on PD for some of the answers to your problems with the cycler. And if you don't find the answers you are looking for there, ask away.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #11 on: June 14, 2009, 06:20:48 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #12 on: June 16, 2009, 03:32:24 PM »
 :welcomesign; SavannahMaude. You'll find understanding, support and tons more here.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
TeenHatesDialysis
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« Reply #13 on: June 27, 2009, 12:23:33 AM »
 :welcomesign;

Sorry, I don't know much about PD, but there are a lot of knowledgeable people here, more knowledge on this board than in hospitals and dialysis centers. Lots of support and positive vibes here, also.

I am glad that you joined the group. :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Maxridex
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« Reply #14 on: June 27, 2009, 02:04:35 AM »
 :welcomesign;
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'' Never give up '' & '' You will never walk alone ! ''

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