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Author Topic: Nice to meet you  (Read 2170 times)
marti824
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« on: June 06, 2009, 09:43:29 PM »
Hi All, I'm new to this site, and already like what I see.  I've been on dialysis for about a year and a half now, and I hate every minute of it.  I am a 50 year old woman, living in New York.  I have spoken to some doctors at a very prestigious hospital here, and they advise that without a transplant, I'll be lucky to last five years. (I'm also diabetic)  This is unacceptable, as I have a ten year old son.  I'd like to see him grow up.  My husband, we'll call him the Saint, was the first on line to donate his kidney, and he was a match.  then after further testing, he was not eligible.  Somewhere along the line he was exposed to hepatitis, so, even though he has never had it and is fine, he can't donate because of the enzymes. So, I'm back to square one and trying to find other avenues for live donors.  Thanks for listening.
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Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: June 06, 2009, 09:55:20 PM »
Welcome to IHD!  First off...don't take a doctor's time line as gospel.  They are guessing, because we are all individuals and react to treatments or illnesses differently.  Keep your head up...things are constantly changing.
You'll find information, support and a multitude of laughs here.  Enjoy!  :)
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Joe Paul
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« Reply #2 on: June 07, 2009, 12:35:30 AM »
Welcome marti824, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
David13
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A meow massages the heart.
« Reply #3 on: June 07, 2009, 04:18:29 AM »
Welcome!   :welcomesign;

You will find a great deal of information from supprotive friends here.

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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kellyt
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« Reply #4 on: June 07, 2009, 04:31:06 AM »
It's nice to meet you, too!  Are you on "the list" Marti?  The testing process is a frustrating one to say the least.  I also had three mtching donors (including my husband).   Good luck.  You have found a great support system here at IHD.  Do you have any other possible live donors lined up?  I look forward to hearing more from you.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: June 07, 2009, 05:23:09 AM »
Hi, Marti,
And a big  :welcomesign; :welcomesign; :welcomesign;

This is the right place to come for support.  :2thumbsup;

Visit often. I'm looking forward to getting to know you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #6 on: June 07, 2009, 05:30:57 AM »
 :welcomesign;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: June 07, 2009, 03:38:17 PM »
Hi Marti and welcome.  I've also be dialysing for a year and a half.  A pretty long year and a half I have to say.  As the others said, ignore timeframes from docs.  There are people here who've been doing dialysis for nearly 30 years! (Go Zach).  Look forward to getting to know you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
serpico
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« Reply #8 on: June 07, 2009, 06:35:33 PM »
It cracks me up when these Doctors try to tell you how long you have to live! Just like a weatherman trying to predict next winter in the spring.Welcome and hang in there! :welcomesign;
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rookiegirl
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« Reply #9 on: June 07, 2009, 06:55:49 PM »
Welcome.  So glad you joined the IHD family.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
monrein
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Might as well smile
« Reply #10 on: June 07, 2009, 07:02:12 PM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: June 07, 2009, 07:13:34 PM »
Welcome to our community!  I agree very much with what others have said concerning our life expectation.  I had a brother who was a very bad diabetic - he had even gone blind because of it.  He was not in a good condition at all, and yet he lasted 10 years on dialysis.  I am now in my 4th year and am looking forward to lots more - want to see my 6 yr old grandson grow up!
You have found a great group for information and support - you have found your IHD family :grouphug;  Please take advantage of all that this site has to offer.  Read and post!






Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Epofriend
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This is what happens in Vegas!
« Reply #12 on: June 07, 2009, 09:18:01 PM »
Hi Marti and welcome!

I too am diabetic and have been for decades. And, I have been on dialysis for more than 6 1/2 years and I'm still going strong.

 :welcomesign;

Epofriend
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MandaMe1986
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« Reply #13 on: June 08, 2009, 10:35:36 AM »
Welcome Welcome I am sure you will love it here. Happy you found us.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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