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Author Topic: Hello to all  (Read 2222 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: May 15, 2009, 06:16:12 PM »
Ok   here I am  ready or not.... learning all I can about kidney failure..... Last year I my GFR was 79 and now its 21.....  Had and still have many symptoms and thought it was just a part of getting older.... At 51  I guess I am really not really old....    I never thought I would have kidney problems..... I have never know anyone to have kidney problems.......  I thought only a few people had kidney problems.......boy was I wrong......  anyway..... hello to all
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Romona
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« Reply #1 on: May 15, 2009, 06:21:02 PM »
 :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: May 15, 2009, 07:17:09 PM »
Glad you found us! :welcomesign;

I hope this IHD family comes to mean as much to you as it does to me.

Aleta  :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #3 on: May 15, 2009, 08:16:26 PM »
 :waving;   Learning your numbers can be jolting.  And going from 79 to 21 in one year is jolting to me!  My disease progressed slowly over the last 14 years, but I don't know if it was the disease itself moving slowly or something I did or didn't do.  ???  Who knows?
Learn all you can.  This site is excellent for that.  You will go back to your doctor feeling so much more in control of your disease than you ever thought possible.

Welcome!  Welcome!  I look forward to getting to know you better. 
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
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« Reply #4 on: May 16, 2009, 01:27:50 AM »
Welcome tyefly, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #5 on: May 16, 2009, 01:44:26 AM »
Welcome  :cheer: This is a great site.  You'll learn heaps.  Ask lots of questions - there's always someone who'll have a good answer (or maybe a silly one - who knows).
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willieandwinnie
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« Reply #6 on: May 16, 2009, 05:38:05 AM »
 :welcomesign; tyefly. You found the place you need to be for information, support and some good laughs. Hope you post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #7 on: May 16, 2009, 05:52:34 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #8 on: May 16, 2009, 10:52:42 AM »
 :welcomesign;  We are glad you joined this site. It has a lot of information but we are especially good at giving each other support.  It is shocking how many people have kidney disease and how little the general population know about it.  I hope you find good answers here and good friends.  We really do care about each other.  I look forward to reading more of your posts.   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MandaMe1986
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« Reply #9 on: May 16, 2009, 11:18:53 AM »
Happy to have you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Zach
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"Still crazy after all these years."
« Reply #10 on: May 16, 2009, 01:27:19 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #11 on: May 16, 2009, 02:22:58 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
TeenHatesDialysis
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WWW
« Reply #12 on: May 22, 2009, 09:43:42 PM »
 :welcomesign;

I never knew anything about kidney disease until two of my daughters were diagnosed with CKD several years ago.  I think I spent a couple of years in shock, searching for answers and finding a bunch of confused doctors. I wish I would have found this group years ago.  I think that anyone looking at kidney failure should be referred here. I am glad that you joined the group.  I think that most hospitals will get you on the transplant list at 21% GFR even if you haven't started dialysis.  Even if you have potential living donors, get listed as soon as possible.
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #13 on: May 25, 2009, 04:35:38 PM »
Welcome to our community, Tyefly (interesting screenname!)  This is just the place for you to be.  Here you will find lots of support, information and even fun.  We have become a real family - caring and sharing  :grouphug;  Just keep reading and keep posting. We need to know how you are doing.
Looking forward to hearing from you.




Bajanne,  Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #14 on: May 26, 2009, 08:02:54 PM »
Thx everyone...... my screen name is cause I love to fish...as I live here in ORegon....fly fish and i am still working on learning to   tye flys    and that is how I got my screen name.....

   All of you are brave people.....  with lots of information..... and this is a great site.....
 
                  I hope that I too can grow and learn here so that I will become just another family memeber....... 
             Once again   thx so much for the great welcome       Kathy
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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