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reg28enia
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« on: September 21, 2006, 12:56:34 PM »
My son is 10 years old and is going into kidney failure. We are scared to death. We belive he will have the type od dialysis at home over night. If any one has any advice for children in dialysis we could use it.
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Joe Paul
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« Reply #1 on: September 21, 2006, 02:13:12 PM »
Welcome reg28enia , glad you found us, sorry you and your son have suffer with this awful disease.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
mallory
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« Reply #2 on: September 21, 2006, 02:48:55 PM »
Welcome reg28enia.  Sorry to hear about your son.  I don't know very much about pediatric dialysis, but here is a link to a website:

http://www.meganshome.net/index.html

The website is about a little girl named Megan who lost her kidney function due to vasculitis.   She was on peritoneal dialysis, the same kind you're looking at for your son, for just over a year.  In May of this year she had a successful kidney transplant from her mom.

You can email her parents, they may have some advice for you.  Good luck, and I'm glad you found this site.
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Fox_nc
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« Reply #3 on: September 21, 2006, 03:52:43 PM »
 :welcomesign;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
angieskidney
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« Reply #4 on: September 21, 2006, 04:26:52 PM »
Glad you are here! I was one of a bunch of kids that were called the Kidney Kids. So I know some of what your son might feel about being a "Kidney Kid"    :welcomesign; I started PD at 16 but was in and out of hospital since 9
« Last Edit: September 22, 2006, 08:34:03 AM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Rerun
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Going through life tied to a chair!
« Reply #5 on: September 21, 2006, 04:34:16 PM »
Welcome Reg28enia.  I think you will find this site very helpful.  You son might enjoy the Arcade Game Room.  Please tell us a little more about yourself.  Are you from the United States?  Are you married?  Just wondering how much support your son will have.  Brothers and sisters??
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Bajanne
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« Reply #6 on: September 21, 2006, 10:59:28 PM »
 :welcomesign; to our community!  We are here for you.  Feel free to ask questions, to vent when you need to.  Give your son a special hug from all of us.  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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« Reply #7 on: September 22, 2006, 04:59:52 AM »
Welcome to the site.      :)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
AlasdairUK
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« Reply #8 on: September 22, 2006, 05:56:53 AM »
Welcome to the site, I started dialysis at 15 and had both PD and HD. I was a bit older than your son, but feel free to ask any questions and I'm sure we can come up with the answers.

Cheers
Alasdair
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
Sluff
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« Reply #9 on: September 22, 2006, 07:06:06 AM »
This is a nondiscriminatory disease. Welcome to the fountain of knowledge.
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