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Author Topic: well,we are back  (Read 2232 times)
celtic warrior
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« on: May 18, 2009, 01:23:17 AM »
As some of you may remember,we used to visit the site some time ago. Sorry to have left it for so long,but it has been quite an eventfull "time out"
for us. Two family members have passed away, the wifes Auntie late last year and then her Mother earlier this year. Also,whilst taking Maria to Dialysis in
bad weather,we skidded on ice and wrote the car off,thankfully no-one was hurt. Lastly, I have had to postpone my open Heart surgery, my fault I am afraid, as I am having a hard time giving up the ciggies. Anyway, on to Maria. She is still in a wheelchair , due to suffering really bad pain in her Feet,Legs and lower back. It was Goodpastures Syndrome that caused Marias Kidneys to fail, but thankfully after a course of drugs, it seems to be receding without further medical intervention. In fact, she is doing so well that they have decided to place her on the transplant list  :yahoo;  :yahoo;  :bandance;  :cheer:

Well, that is all for now, and I promise not to leave it so long this time.

Tony.
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Sluff
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« Reply #1 on: May 18, 2009, 05:42:53 AM »
Glad to see you back.. Now that you are back your luck will improve... ;)
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David13
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A meow massages the heart.
« Reply #2 on: May 18, 2009, 05:44:53 AM »
Glad you are back!  Sorry to hear about the events that have gone on while you were away, but I am hopeful things will improve. 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kitkatz
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« Reply #3 on: May 18, 2009, 06:18:58 AM »
What an eventful life you have had. My heart goes out to you and your family.  Good luck with getting listed for transplant.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
celtic warrior
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« Reply #4 on: May 18, 2009, 06:47:33 AM »
thank you my friends, its good to know that even if i had lapsed in being here, my friends did  not forget    THANK YOU
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paris
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« Reply #5 on: May 18, 2009, 09:26:06 AM »
Nice to see you back.  Thanks for updating us.  You have both dealt with a lot in the past year.  Please let us know how the transplant listing goes  :2thumbsup;   Don't stay away so long!   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
del
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del and willowtreewren meet
« Reply #6 on: May 18, 2009, 10:16:29 AM »
Nice to se you back. Was nice chatting with you on Sunday!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
Sunny
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Sunny
« Reply #7 on: May 18, 2009, 08:00:45 PM »
Good to hear your wife is doing better. She is lucky to have you by her side through all this.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
MIbarra
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Stopping to smell the bluebonnets
« Reply #8 on: May 18, 2009, 08:21:36 PM »
 :welcomesign; back!
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Cadaver transplant April 29, 2007
G-Ma
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« Reply #9 on: May 19, 2009, 02:06:17 AM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #10 on: May 19, 2009, 05:53:36 AM »
 :welcomesign; back
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Ken
monrein
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Might as well smile
« Reply #11 on: May 19, 2009, 10:59:25 AM »
Sorry to hear about the tough patch it's been for you both.  Glad to see you back posting now so  :welcomesign; back.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cookie2008
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« Reply #12 on: May 19, 2009, 02:26:18 PM »
 :welcomesign; back









EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: May 19, 2009, 02:40:17 PM by kitkatz » Logged
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #13 on: May 20, 2009, 02:17:40 AM »
Great to have you back.  we chatted in the chat room the other day - I didn't realise you'd been away.  Look forward to catching up.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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