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Author Topic: Back from a 4 day hospital stay.  (Read 2552 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: May 19, 2009, 08:44:48 PM »
It's good to be home. I missed my kitty.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: May 19, 2009, 09:11:53 PM »

Good to see you back - how are you feeling?  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
swramsay
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My son, Scotland, is my heartbeat.

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« Reply #2 on: May 19, 2009, 09:27:13 PM »
Hope it went well !!

I am about to go in for a 4 day stay next week. I'm having a piece of my neobladder removed that the first surgeon missed this past September. When I had my last kidney removed in September, it looks like the surgeon didn't get every last piece of ureter out. Any urothelial tissue that remains is at risk for further spread of the bladder cancer.

I hope the dialysis issue will be no problem. I am brining my own blunt needles because I am doing buttonholes now. I anticipate a quick recovery because we go to Disney World for 15 days just shy of 4 weeks later.

Glad you are back and hope you are recovering quickly.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
pelagia
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« Reply #3 on: May 19, 2009, 11:13:26 PM »
welcome home Mikey.  I bet your kitty missed you too  :cuddle;

SW - good luck with the surgery.  Hopefully it will all go smoothly.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: May 20, 2009, 01:25:14 AM »
Good that you're home.  Good luck Sw - keep that trip at the forefront...you'll get there.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Romona
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« Reply #5 on: May 20, 2009, 04:07:07 AM »
 :2thumbsup; Welcome home Mikey
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Sluff
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« Reply #6 on: May 20, 2009, 04:12:25 AM »
Glad you are back Mikey!   :2thumbsup;
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monrein
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Might as well smile
« Reply #7 on: May 20, 2009, 04:55:07 AM »
Mikey, I hope you're totally OK.  Missed you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
rose1999
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« Reply #8 on: May 20, 2009, 10:26:51 AM »
Welcome back Mikey, bet your kitty missed you too.

Good luck with your surgery SW.

 :grouphug;
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Rerun
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Going through life tied to a chair!
« Reply #9 on: May 20, 2009, 10:38:36 AM »
The stay would not be half as bad if you could take your kitty.  Glad you are home.  Get well soon.

                           :flower;
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G-Ma
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« Reply #10 on: May 20, 2009, 01:27:14 PM »
 :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #11 on: May 20, 2009, 03:15:18 PM »
We missed you almost as much as your kitty!   How are you doing now?   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
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Always carrying the big silly grin!
« Reply #12 on: May 20, 2009, 03:32:36 PM »
Glad you are back with King Leon!!!   :cheer:
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
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