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Author Topic: Need a little help  (Read 3980 times)
boxman55
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« on: January 10, 2009, 09:59:00 AM »

Hi All, I participated in the NKF of Wisconsin Kidney Walk this past fall and I just got an e-mail from them asking me if I would be willing to write a couple of paragraphs discussing the reasons why it was a good thing to do so. It then will be published in their March Newsletter during Kidney Month. So, I have many talents but the least of them is writting. How about some ghost writers help me out. Besides making sure I mention IHD, how about some one liner talking points that I can use. This is your chance to get your 15 minutes of fame with me taking all the credit...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kitkatz
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« Reply #1 on: January 10, 2009, 10:04:55 AM »

In your situation with the one leg, you could make a few one liners.

As I wheeled my self across the finish line on the WALK I felt exhilarated.

I hopped to it on this walk.

I had a wheel good time.
 :rofl; :rofl; :rofl; :rofl;

It is early.  They only will get worse.



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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #2 on: January 10, 2009, 10:27:34 AM »

Ohh boy, if the above is any indication of the quality of writers we have on this site, I am in big trouble  :rofl; ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kitkatz
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« Reply #3 on: January 10, 2009, 10:28:51 AM »

I feel the insult!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
nursewratchet
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« Reply #4 on: January 10, 2009, 10:31:55 AM »

I'm nominating Okarol, or Monrein.  They seem to have some talent in that area.  Any takers!!!  I'm afraid I would be as bad as Kitkatz :rofl;
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Rerun
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« Reply #5 on: January 10, 2009, 10:54:00 AM »

Boxman, tell us "why" you participated in the walk.  Tell us "who" you were walking for.  Was it for yourself, others, or friends who have passed on.  Tell us how it felt to finish.... to get the t-shirt.  To wear the t-shirt. 

I love this line..... "to exist from week to week on dialysis is exhausting.... "

Hope this helps.                 :waving;
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Wenchie58
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« Reply #6 on: January 10, 2009, 11:06:06 AM »

Awww Box, I have read many of your posts.  You can do it!  Write from the heart.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

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« Reply #7 on: January 10, 2009, 11:25:10 AM »

Hi All, I participated in the NKF of Wisconsin Kidney Walk this past fall and I just got an e-mail from them asking me if I would be willing to write a couple of paragraphs discussing the reasons why it was a good thing to do so. It then will be published in their March Newsletter during Kidney Month. So, I have many talents but the least of them is writting. How about some ghost writers help me out. Besides making sure I mention IHD, how about some one liner talking points that I can use. This is your chance to get your 15 minutes of fame with me taking all the credit...Boxman

Why did you do it? Raise awareness? Raise money? Get out of the house?  Meet people? Is it important to connect with other kidney patients (insert IHD here LOL)
How did the event meet your expectations? More people than you imagined? Patients and their friends or families? What surprised you?
I have never been on a walk, so tell us what it was like, from the time you signed up, and people started contributed funds - through to the day of the event, who was there, did you have help getting there, how did you manage your wheel chair? These are a few questions I would want to read about. If you answer some of them and I can help organize your thoughts, if you want.
I am glad they asked you to participate Boxman!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #8 on: January 10, 2009, 01:06:38 PM »

Boxman   tell it like it was from your heart --- why did you do it
              you are a man with a way with words  ---- you will do fine
              revert to humor --- you always make me laugh and smile
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kidney4traci
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« Reply #9 on: January 10, 2009, 02:03:20 PM »

I agree, you are a natural at conveying what you want here.  Give it a go!  I think this is great!! :clap;
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Might as well smile

« Reply #10 on: January 10, 2009, 02:26:56 PM »

Boxman, whatever you write will be well-received, I have zero doubt about that.  If you decide you want someone to go through it once you're done, you're welcome to PM it to me (or email it if that's easier) and I'll proof it for you.  I say just describe the experience in your own words as if you were talking to a specific person and it will be terrific.   :flower; :cuddle; :flower;
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(2 1/2 hours X 5 weekly)
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boxman55
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« Reply #11 on: January 10, 2009, 03:32:10 PM »

You guys are great thank you for the encouragement and help. This will be my second publishing, once for the Firefighters shoveling my drive and know this. It might start going to my head. Here comes the next John Grisham  8) ...Boxman
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Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Rerun
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Going through life tied to a chair!

« Reply #12 on: January 10, 2009, 09:35:53 PM »


Know this has no "k"..... it would be "now this".......  Just trying to shrink your head a little!

Now get to your article.  We want to read it!!!                :cuddle;
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boxman55
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« Reply #13 on: January 12, 2009, 02:37:19 PM »

Rerun, I am going to use your line "to exist from week to week on dialysis is exhausting.... " Thanks...Boxman I will post the final letter shortly...

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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
boxman55
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« Reply #14 on: January 13, 2009, 11:53:06 AM »

With help from rerun and monrein here is the final draft
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
okarol
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« Reply #15 on: January 13, 2009, 11:56:30 AM »


Great job Boxman!
The only change I would make is that hemodialysis is one word.
 :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paul.karen
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« Reply #16 on: January 13, 2009, 12:11:33 PM »

I dont see the final draft??
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Curiosity killed the cat
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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paul.karen
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« Reply #17 on: January 13, 2009, 12:13:08 PM »

 :Kit n Stik; :Kit n Stik; :Kit n Stik;

Found it.

If anyone is challenged like me click on the link Boxman provided
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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Lucinda
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« Reply #18 on: January 13, 2009, 12:55:34 PM »

Hi Boxman

I have been away but I would have offered to write it for you but I think you have done a terrific job.  Mind you, if I had written it for you, you would have had to change everything anyhow.  Still remember the story I did during the olympics over here that was picked up by the New York Post.  The sub-editor at the paper rang and told me he had just translated it from Aussie into Yank.  Don't put yourself down as a writer.  You are very good and that's the word from a seasoned journo!! xx 
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BRANDY
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« Reply #19 on: February 04, 2009, 08:01:58 AM »

Boxman--- that was a really good story you wrote . hope to see more of your intellegence in the near future
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« Reply #20 on: May 14, 2009, 02:30:48 PM »

I just received the National Kidney Foundation of Wisconsin's newsletter "Connections - Spring 2009" in the mail. On the front page is our very own BOXMAN! His photo and story are the main feature! The story is called "Why I Walk" and he mentions ihatedialysis - isn't that cool? I don't know if you can see it online, but I will scan it once I get a computer hooked up to my scanner (it might be awhile, computer is dead.)

Congrats Box! I am so proud of you!! :yahoo;

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #21 on: May 14, 2009, 02:37:57 PM »


I found it online! Read it here http://ihatedialysis.com/forum/index.php?topic=13907.0
or follow the link at the end of the news story to see it online.
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #22 on: May 14, 2009, 02:52:51 PM »

 :bandance; okarol, I also received a copy of the Wisconsin's newsletter with Box featured. I was touched by what he had written and I hope he knows how much we miss him.  :cuddle;
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« Reply #23 on: May 14, 2009, 03:04:35 PM »

How wonderful!  That is great  :2thumbsup;   Boxman, we are proud of you, love you and miss you   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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