Otto's going to try Nxstage

[pelagia]

you two need a bunch of hugs! 

[monrein]

Couple more
 

[okarol]

Sending you some LOVE Amy 

[lola]

Thanks guys you have no idea how bad I needed those hugs, this sucks.

[boxman55]

Special thoughts for Otto and you, Amy. I can't imagine how frustrated Otto must be and you for that matter...Boxman

[G-Ma]

 

[lola]

Otto went today to the Transplant Center and they told him because of everything he went through he may feel like this forever

[monrein]

Oh Lola, what a horribly difficult thing to have to hear.  Now we just have to hope that that will be just another example of doctors being wrong.  When I was 8 months old they told my parents I'd likely be dead in 6 weeks.  They were wrong.
 

[okarol]

Otto went today to the Transplant Center and they told him because of everything he went through he may feel like this forever

Did they look in a crystal ball? That's ridiculous for them to make a statement like that. He went through a big ordeal and it seems very possible that it just may take time for him to recover. I know it's hard. I hope he improves. One day at a time.

[pelagia]

WHAT!?!

There's no excuse for them saying something like that. 

I completely agree with Karol.  Otto went through a lot, physically and emotionally, and his body was thrown into chaos. Maybe the time frame will be months or even longer to see the improvements when major organs, hormonal systems and dialysis are involved.   But, Otto's a strong guy and he has you.  Love is a powerful thing Amy and your love for Otto has been evident in every word you have posted. I admire the two of you so much for your courage and the love you have for each other.
 
Please keep believing in the power of love and positive thinking!

 
 

[lola]

Well Otto is feeling the best he has felt in a looooooooong time . BUT his Dr on Friday busted him with skipping and that even though he looks and feels good his labs are AWFUL!!!! They even told him they would like to see him doing D 6x's a week and Otto told them flat out that will NEVER happen. He needs to decide if he wants to start with the Home-Hemo or go back in center  funny how he has forgotten how awful he felt and that the kids and I lost our Otto, they talked about taking a break and doing in center for a few weeks if he is just to overwhelmed. I wish he would just take a break as he is at a point of wanting to just say screw D all together, good thing he loves me and the kids or he would soooooo be done with this. It's hard to even talk to him about this as I can't even begin to understand.

[paris]

Lola. you are a Superwoman and I admire your strength.  You all have had a tough year and I am sure Otto is tired of it all.  Maybe going back to incenter for a break could help. I wish there was a simple answer.       

[cherpep]

I'm saying extra prayers for you, Otto, and your kids.  Praying for strength. 

[pelagia]

No matter what I try to type here, I don't seem to be able to express what I feel when I read your words and think about all your family has been through.  You are always in my thoughts and prayers. I hope the spring brings good health to Otto and Dani. 

[Sunny]

I hope Otto starts feeling a little better soon. I think that would probably help his state of mind. It's so hard to feel upbeat and alive when so many physical difficulties have made Otto's life so hard lately. This must be very hard for you and the family too. Wishing you the best.

[lola]

Well Otto did D 5 days this week and is already not looking forward to next week. The weather is finally getting nice and he'd rather be out on his bike verses being on D BUT I told him if he continus to be a naughty boy he'll be dead and then no more bikes for him but my smart as$ comments are rubbing off because he says he's pretty sure Heaven has the best Bikes and tracks just waiting for him.

[jbeany]

Ha - tell him he's just going to have to sit around on a cloud in a dress, playing a harp!

[kitkatz]

Tell that husband of your to behave or  .