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Hello to all the people suffering from kidney failure!!
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Topic: Hello to all the people suffering from kidney failure!! (Read 2509 times)
maritza0486
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"Pple cant do evrythin but every1 can do somethin"
Hello to all the people suffering from kidney failure!!
«
on:
May 08, 2009, 12:43:45 PM »
I am 23 years old and live in New York. I have had kidney failure since the age of 17, I assume earlier than that but I did not go to the doctor until that age. I would say since 14 years old, when I was overweight and had high blood pressure. Anyway, I had my very first dialysis treatment on May 6, 2009 which was 3 days ago and it was not so bad. Had a kidney transplant in February 2005 and it lasted me 3 years. I am very glad to be here. I researched some things on dialysis and heard some things but wanted to go more in depth with my search so I found this site. Hopefully I find out more. Thanks for having me.
Logged
~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
paul.karen
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Re: Hello to all the people suffering from kidney failure!!
«
Reply #1 on:
May 08, 2009, 12:49:05 PM »
Maritza
Glad you found us here at IHD.
Glad your first day was uneventful hopefully that trend will continue.
Also sorry your txplant went out on you. But three years is ok. Hopefully you will get another soon. Hope to see yo on many threads here.
P&K
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
maritza0486
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"Pple cant do evrythin but every1 can do somethin"
Re: Hello to all the people suffering from kidney failure!!
«
Reply #2 on:
May 08, 2009, 01:20:25 PM »
Thanks. I am feeling very welcome already. I appreciate it. I will be definitely posting on this site a lot more. Its not only informative and supportive, but its just a great feeling overall just knowing that others just like you are here for you.
Logged
~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
cherpep
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Re: Hello to all the people suffering from kidney failure!!
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Reply #3 on:
May 08, 2009, 01:27:19 PM »
WELCOME!!!! I think you're gonna like it here. This is a very supportive and understanding community. I look forward to seeing you on the boards. Be sure to check out the CHAT! It gets hopping in the evenings.
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willowtreewren
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My two beautifull granddaughters
Re: Hello to all the people suffering from kidney failure!!
«
Reply #4 on:
May 08, 2009, 01:29:22 PM »
You glad you found us, Maritza. And welcome to the IHD family@
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
kellyt
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Re: Hello to all the people suffering from kidney failure!!
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Reply #5 on:
May 08, 2009, 01:43:25 PM »
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
monrein
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Might as well smile
Re: Hello to all the people suffering from kidney failure!!
«
Reply #6 on:
May 08, 2009, 01:46:31 PM »
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Joe Paul
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Re: Hello to all the people suffering from kidney failure!!
«
Reply #7 on:
May 09, 2009, 02:30:27 AM »
Welcome Maritza, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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Re: Hello to all the people suffering from kidney failure!!
«
Reply #8 on:
May 09, 2009, 06:37:01 AM »
Maritza. Great information and support here. Please post often and welcome to the family.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MandaMe1986
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Re: Hello to all the people suffering from kidney failure!!
«
Reply #9 on:
May 09, 2009, 09:02:14 AM »
Hello again. Its nice to have you. This site is wonderful it really is. You will find everything your looking for and more. Hope to see you around.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
peleroja
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I have 16 hats, all the same style!
Re: Hello to all the people suffering from kidney failure!!
«
Reply #10 on:
May 09, 2009, 09:34:05 AM »
Welcome to the board. I must say, though, that I don't suffer from kidney failure; I enjoy every minute of it!
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Zach
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"Still crazy after all these years."
Re: Hello to all the people suffering from kidney failure!!
«
Reply #11 on:
May 09, 2009, 01:03:45 PM »
Good to have you here!
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
G-Ma
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Re: Hello to all the people suffering from kidney failure!!
«
Reply #12 on:
May 09, 2009, 01:07:14 PM »
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
Member for Life
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Posts: 6154
Re: Hello to all the people suffering from kidney failure!!
«
Reply #13 on:
May 10, 2009, 06:11:13 AM »
G'day and welcome to IHD!! You've been through quite a lot in the last 8 or 9 years! I am sorry your sister's transplant only lasted a few years - not what you need when you're 20 years old and want to live life!!! I hope you can find support and information here!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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