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Author Topic: HELLO  (Read 2623 times)
josie
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« on: April 20, 2009, 07:27:24 AM »
.Well, this is my premier posting on this site. I live in Western massachusetts, am a mother of three teeneage boys, and have pkd. i do home hemo with my partner carlos on nx stage after about a year at a unit. Being on the unit left me sick and disorientated the days I had treatment. nx stage is the best! It has improved quality of life 1000 times. I am one year on the transplant list, and this fall I will be going back to school. And at my age, that is no small feat. Well, I guess thats the gist of it I am looking forward to getting to know the website more!
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willieandwinnie
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« Reply #1 on: April 20, 2009, 08:52:28 AM »
 :welcomesign; josie. Glad you found us. There a lot of NxStage users and caregivers here and I'm sure you'll have all kinds of information to share and we are loaded with support. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: April 20, 2009, 09:33:42 AM »
Hi, Josie.
 :welcomesign;

I am my husband's NxStage partner and we are sooooo pleased with it. I'm sure we will have many stories to share! :waving;

Where in Western Mass? Our daughter lives in Lenox! We just cart our NxStage machine up there and keep on dialyzing.

You'll love this forum. Post often!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #3 on: April 20, 2009, 09:55:05 AM »
Josie, welcome to IHD.

                                           :welcomesign;
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paul.karen
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« Reply #4 on: April 20, 2009, 12:52:24 PM »
 :waving; Josie (do you have any cats?)

I am glad to hear your NXstage is giving you so much better dialysis then incenter :thumbup;.

Sounds like you have a full schedule on your hands.  What will you be going to school for?

Glad you found us here at IHD.  Hope to see you on many threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Romona
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« Reply #5 on: April 20, 2009, 02:52:12 PM »
 :welcomesign;
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Joe Paul
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« Reply #6 on: April 20, 2009, 03:16:56 PM »
Welcome Josie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
G-Ma
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« Reply #7 on: April 20, 2009, 08:14:47 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #8 on: April 21, 2009, 12:36:58 PM »
 :welcomesign;  Josie.  Glad you joined us.  There is great information here and wonderful support.  Looking forward to hearing more from you.  Especially about your three teenage sons!  You do have a lot on your plate.  It helps to see someone like you, living with kidney failure and still moving forward.   Post often   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: April 22, 2009, 07:20:38 AM »
Welcome aboard.  This is a great place for information and the occasional shoulder to cry on. 
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rookiegirl
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« Reply #10 on: April 22, 2009, 09:36:48 AM »
Welcome to IHD.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
josie
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« Reply #11 on: April 23, 2009, 01:20:41 PM »
Thanks to all who welcomed me to the site. This is the first time I have posted anything on the web, and I think it's going to be a positive experience. Being at home with my machine kind of isolates me from others with kidney disease. The sun is finally coming out in my neck of the woods, so that always lifts my spirits. Today I am going to try my hand at growing peppers from seeds. i love watching things grow. My boys are on spring vacation, so are basically driving me nuts. In two weeks my step daughter, her husband and two boys are coming to stay with us until they can get back on their feet. They are coming from Jersey and that will mean nine people in my apartment for at least a couple of months. Well, that's about it for now. It took me a couple of days to figure out people had posted me back, so as i get used to navigating the system, I will write back to those of you who have so graciously welcomed me here!!!
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cherpep
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« Reply #12 on: April 23, 2009, 01:23:14 PM »
Welcome, josie!!  I'm a NxStager also - have 2 teenage kids.  Welcome!!!!   Sounds like your apartment is going to be real 'cozy' for a little while.  Hang in there & take advantage of having the place full - let them do all the chores!!   :)
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pklipe57
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« Reply #13 on: April 23, 2009, 03:05:11 PM »
 :welcomesign; to IHD.  We're glad you're here.
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MandaMe1986
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« Reply #14 on: April 23, 2009, 07:53:57 PM »
 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kellyt
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« Reply #15 on: April 23, 2009, 07:56:13 PM »
 :waving;   Hi Josie!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MIbarra
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Stopping to smell the bluebonnets
« Reply #16 on: April 23, 2009, 08:14:14 PM »
 :welcomesign;
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Cadaver transplant April 29, 2007
Wattle
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« Reply #17 on: April 24, 2009, 05:02:41 AM »


 :waving;  Welcome Josie  (and the Pussycats  ;musicalnote; ;musicalnote; ;musicalnote;  )
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Ang
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« Reply #18 on: April 28, 2009, 01:09:24 AM »
 :welcomesign; josie
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live  life  to  the  full  and you won't  die  wondering
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