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Author Topic: Newbie  (Read 3225 times)
Arge
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« on: April 16, 2009, 05:36:56 AM »
I have been reading this forum since finding it after it was recommended on one of the newsgroups that I read now and then. 

I have been fighting this for 8 years now, but I have finally been told that it is time to start dialysis.  My creatinine has stayed in the 2's until the start of this year and has consistently been in the high 4.s since

From what I know about dialysis, PD seemed like the best choice for me and I am scheduled to have a cath put in tomorrow morning.  Of course it can't be that easy, they must repair a small hernia as well.  Needless to say, I am scared.

I am an insulin dependent diabetic and wear an insulin pump.  Without the pump, I am sure I would have been in this position years ago.

Since reading many of the post, new concerns have come up that I never thought about starting with the location of the cath.  I sleep on the left side of the bed, the bathroom is to the left of the bed and I can't lay on my right side at all because of a sore shoulder.  I like to sleep on my left side, but not for sure what the best placement of the cath would be and haven't even been asked by the surgeon.  I will call a PD nurse today and see what I can find out.

I also have 3 large dogs.  I have a 121 lb lab mixed, a 115 lb Newfoundland and a 135 lb Newfoundland.  I know that special attention must be taken when hooking up in regards to proper cleaning, but are there any special things I must do in regards to the dogs.  Do I ban them from coming upstairs?  They usually sleep in our bedroom.

Hopefully this all goes well, and even though new, I have picked up a lot by reading this group.

I am 62 and retired, but I do a lot of volunteer work.  I volunteer with a TCE tax assistance program which keeps me very busy during the income tax season.

Arge
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willieandwinnie
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« Reply #1 on: April 16, 2009, 05:54:55 AM »
 :welcomesign; Arge. We are so happy to joined us. What took so long? Just kidding. Good luck tomorrow and please let us know when you get a chance. Someone that has PD knowledge will be along to answer your questions. My husband did hemo so I wouldn't be much help to you. Please check some of the older threads too, loads of information there. We have so much information and support to give that we are sure you'll love it here. Take care and again good luck tomorrow.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #2 on: April 16, 2009, 06:25:11 AM »
 :welcomesign; and I hope we can help you get more information to help with the many decisions that lie ahead.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #3 on: April 16, 2009, 06:41:20 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Tinah1968
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ME
« Reply #4 on: April 16, 2009, 06:49:35 AM »
 :welcomesign; Glad to have you aboard
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
dwcrawford
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« Reply #5 on: April 16, 2009, 07:08:38 AM »
I went to the surgeon yesterday to discuss and be evaluated for a cath and a fistala.  I don't think  I had a lot of input into where it went.  He just located the best places.  Luckiy I am  right handed and my left arm was best.  Good luck friend.  I know I'm scared....get mine done on Monday so ask me how it went if you want. lol  Oh,  mine  is hemo so I don't know if things are similar or not.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Romona
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« Reply #6 on: April 16, 2009, 09:10:38 AM »
 :welcomesign;
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MandaMe1986
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« Reply #7 on: April 16, 2009, 11:24:24 AM »
Happy to have  you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paris
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« Reply #8 on: April 16, 2009, 06:00:05 PM »
 :welcomesign; Arge,  Glad you joined us.  There is a lot of information here regarding PD and many members who can help you with any questions you may have.  We are also very good at giving support.  This is a great place to come because everyone understands what you are going through.  Let us know how the cath positioning goes.  You are part of the family now and we care.   :grouphug;



paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Arge
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« Reply #9 on: April 16, 2009, 06:23:30 PM »
I would like to thank all of you for your kind welcome.

Visited the PD nurse today and she marked the site for the cath.  Will let you know how things go

Arge
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TeenHatesDialysis
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« Reply #10 on: April 16, 2009, 08:20:32 PM »
 :welcomesign; Arge

I am glad that you finally decided to join the groupl. We have been waiting for you. :cuddle;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Joe Paul
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« Reply #11 on: April 16, 2009, 10:33:23 PM »
Welcome Arge, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Swee_tone
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« Reply #12 on: April 17, 2009, 09:27:07 AM »
Welcome!  :waving;
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Diagnosed in 2000, not on dialysis yet
rookiegirl
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« Reply #13 on: April 17, 2009, 11:10:15 AM »
Arge welcome to IHD.

I was on PD from Oct 2007 until my kidney transplant on 3/20/09.  My cath was placed on the left side and I sleep on my left side with no problem.  As for your dogs, I would talk to your PD clinic about them.  I would think they should not be in the room with you while you do your exchanges or hook up and to keep your room clean.

~RG
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Wallyz
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« Reply #14 on: April 17, 2009, 12:32:24 PM »
Welcome
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paul.karen
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« Reply #15 on: April 17, 2009, 12:39:31 PM »
 :waving; Arge

Got yourself some big ol playful pups.  Love the goofynewfie dogs. But im partial im from there.
What side did the PD nurse say to get the cath placed?
From what i have read (im no pro ask the docs) the dogs are ok in the room well at least cats are?  but not during hookup or disconnect from the machine.  Once on the machine it is self contained from what i have heard.

Glad you joined us.  Hope to see you on many threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wattle
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« Reply #16 on: April 17, 2009, 11:21:35 PM »
 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willowtreewren
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My two beautifull granddaughters

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« Reply #17 on: April 18, 2009, 03:24:11 PM »
 :welcomesign;

Welcome to IHD. You have found a wonderful community!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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