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Author Topic: Hello  (Read 2722 times)
jdy123
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« on: April 15, 2009, 09:14:34 PM »
Hello Everyone,

I've been lurking around for awhile and I finally posted a question concerning nausea under home dialysis. 

So here is my story:

My kidney failure is due to having lupus for over 35 years.  My kidneys finally failed me in November 2005.  I had a hard time excepting it (even now).  I suffered and endured all my other problems with my lupus but the kidney failure almost broke me.  The only good part is that I still have some function to my kidney so I am able to do dialysis every other night.   I am on the transplant list and I hope to get a kidney soon (before the lupus kills the rest of my body.) 
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Zach
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"Still crazy after all these years."
« Reply #1 on: April 15, 2009, 09:15:24 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #2 on: April 15, 2009, 09:27:45 PM »
Welcome jdy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
TeenHatesDialysis
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WWW
« Reply #3 on: April 15, 2009, 11:41:42 PM »
 :welcomesign;

I don't know if this will help or not, but I was just reading about "hard water" in home dialysis causing nausea, because magnesium is not removed from the water. Here is the link to the article...
http://www.homedialysis.org/files/pdf/resources/tom/200708.pdf

Sorry that you have to go through this crap. I am glad you joined the group. This is an extremely supportive group. I am only a caregiver, but I am sure others have nausea remedies.

Peace, happiness and one healthy kidney for everyone! :flower;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
willieandwinnie
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« Reply #4 on: April 16, 2009, 04:49:31 AM »
 :welcomesign; jdy. Glad you came out of lurking. We are a wonderful group, loads of information and lots of support. Please post often and check out some of the older threads as there is lots of good stuff in them. You should see if your weight has changed or your kidney function has declined more. hope you get it figured out.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #5 on: April 16, 2009, 06:26:10 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #6 on: April 16, 2009, 06:39:33 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Tinah1968
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ME
« Reply #7 on: April 16, 2009, 06:52:31 AM »
Welcome jdy I think alot of us feel like when we got this disease we were at wits end then we found IHD.  Hope you find comfort knowing your not alone. Gald your here
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Romona
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« Reply #8 on: April 16, 2009, 09:09:18 AM »
 :welcomesign;
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MandaMe1986
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« Reply #9 on: April 16, 2009, 11:38:03 AM »
Hi there, thanks for sharing with us. Come back and let us know  how your doing.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
cherpep
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« Reply #10 on: April 16, 2009, 12:02:36 PM »
Welcome.  Keep asking those questions, and vent when you need to.
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paris
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« Reply #11 on: April 16, 2009, 06:06:36 PM »
 :welcomesign;   I hope you get your transplant soon, so you have one less thing on your plate.  Glad you joined us.  This is a great place for support and for information.  Looking forward to hearing more of your story.  Welcome to IHD.




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MIbarra
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Stopping to smell the bluebonnets
« Reply #12 on: April 16, 2009, 06:11:45 PM »
Welcome! My big sis has lupus too. It is tough! I know you will find lots of support here.
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Cadaver transplant April 29, 2007
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