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Author Topic: New to board, and start Dialysis today <g>.  (Read 2540 times)
GonePostalWV
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« on: April 01, 2009, 07:11:14 AM »

Hello folks,
My names Vince... and I'm a mailcarrier from West Virginia (hence the screen name <g>).
I have PKD, and have recently came to the conclusion that it's time to start my Dialysis treatments.
(Perfect day to start ... April Fools day <g>.)

I've been dreading this day, but have known it's coming for years.  GFR has dropped down to a 10,
and I've been feeling drained and lacking my usual energy.  I've been fighting my kidney disease by
trying to keep up a positive attitude... but think I need the help of dialysis to help keep me moving.

I carry a walking mail route here in Charleston , WV... and hope to be able to keep working.
I know to expect ups and downs... but hope I'm able to work thru the bad days.

Great site you all have here.  I appreciate those who came before me.. and hope someday to be a
help to those who come after me.

Quick description of myself. 
46 yr old Mail Carrier for the USPS
Fairly good health overall... except for my "twins".
Recently went up to the Cleveland Clinic to get my eval started for Transplant someday.
Hobbies: Love to read (Sci Fi , Fantasy), Sports (Fan of WVU and Marshall U football) , and playing on my computer
Purchased a MINI Cooper last year to celebrate my midlife crisis <g>. (Figured I should have a fun car to drive to and from
my treatments 3 days a week....)
Married to my wife Kim since 1985
No Children, but two cats... Tabby and Petey

Wish me luck this evening.  I hate needles... so if you here whimpering coming from the WV area... it will probably be me <g>.
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willieandwinnie
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« Reply #1 on: April 01, 2009, 07:15:46 AM »

 :welcomesign; Vince. Great introduction and good luck tonight. Please let us know how it goes. We are a wonderful group for offering information and support. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #2 on: April 01, 2009, 07:17:07 AM »

 :waving; Vince.

Glad you found us.  Sound like you are prepared for your first night.  Least as prepared as you can be.  I hope it all works out for you.  I also hope you will have the strength to carry on with your job.  Can you get one of those push cart things??

And what does <g> mean??  Im slow.

Hope to see you post often, you found the best site for people with kidney disease on the whole WWW.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile

« Reply #3 on: April 01, 2009, 08:35:35 AM »

 :welcomesign;  Vince.  I too liked your intro and I know that you'll find much information and support here.  Post a lot.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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A meow massages the heart.

« Reply #4 on: April 01, 2009, 08:45:43 AM »

Welcome, Vince!   :welcomesign;

I am sure you will a great deal of both information and support here.  Best of luck to you with your first treatment.  What kind of access do you have?  Be sure and let us know how it went.

I hope to see you posting often. 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Romona
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« Reply #5 on: April 01, 2009, 08:50:49 AM »

 :welcomesign; Best of luck tonight!
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Zach
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"Still crazy after all these years."

« Reply #6 on: April 01, 2009, 09:31:57 AM »

Great to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MandaMe1986
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« Reply #7 on: April 01, 2009, 11:30:38 AM »

Happy to have you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
joyfulmother
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Becky

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« Reply #8 on: April 01, 2009, 12:55:19 PM »

Welcome Vince - glad to have you here.  I started dialysis at the first of this year.  I hate needles too and that's one of the reasons I'm doing peritoneal dialysis. 

<g> means <grin>!
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
G-Ma
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« Reply #9 on: April 01, 2009, 01:46:39 PM »

 :welcomesign;

Thanks Joyful about the g...I was wondering too.

GonePostal with your sense of humor you will do fine.  We can now picture you whizzing along in your Mini..what color is it?
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #10 on: April 01, 2009, 03:46:02 PM »

Welcome Vince, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jbeany
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Cattitude

« Reply #11 on: April 01, 2009, 06:18:23 PM »

Welcome to the board - hope you survived your first day okay.  The first month can be pretty tough to adjust to.  Hang in there, though - it does get easier!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

GonePostalWV
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« Reply #12 on: April 01, 2009, 07:21:35 PM »

Thanks for the warm welcome aboard everybody...

I think I survived my first treatment fairly well.  Picked up a prescription for creme to numb my arm,
and it seems to have helped. (Still hurt like the dickens though.... surprised myself by keeping my
swearing to a minimium, and under my breath for the most part <g>)

Even though my fistula is only 2 months old.. .the folks at the center seemed to think it was a really
good one.  I have good veins anyways.. so that's a blessing. I made it a point to let them know I have
a tendency to cramp up , so they were careful not to pull off too much fluids.

(I still had a bit of a cramping problem... but nothing major.)  The only aftereffects I had were slight
nausea after the treatment... and some forearm swelling where they stuck me.  The swelling's bad
enough that I can't really see the vein... except down by my elbow a handspan down from my lowest
stick.  Not sure if I should apply a little ice to my forearm to help with the swelling... or should just give
it a bit of a rest and let the swelling work it's way out on it's own.

I still have a good strong "thrill" going... so I'm thinking the vein held up ok.  I'm planning to take the
day off tomorrow to see how I feel , and then go back and work half a day on Friday, before my next
treatment.  They are starting me out fairly slow... first two days 3 hours , then will switch to 4 hours
on Monday if things are going OK. Barring any major problems I'll be back on my full mail route Monday...

I think I'll head off to bed and get a little bit more reading out of the way.  Although I might need to
limit my reading time at home, and save all my books for the chair <g>.  Best to everyone.....


Oh,  forgot to mention, My MINI is Lightning Blue with White stripes.  It's a great little car, and extremely
fun to drive.  Surprisingly roomy as well... considering I'm over 6 ft tall ....
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Wallyz
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« Reply #13 on: April 02, 2009, 12:59:07 AM »

Quote
Still hurt like the dickens though.... surprised myself by keeping my
swearing to a minimium, and under my breath for the most part

C'mon, suck it up, cream puff! ;D

Hey Vince.  Welcome to IHD, sorry you have to be here.  I will tell you that the best thing I did for pain and care for my arm is start sticking my self, and getting buttonholes.   Don't become dependent on the techs, take care of your own damn self.  Take charge, look into going home with home hemo, and take charge of your treatment.  We are here for support and encouragement.
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Slywalker
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« Reply #14 on: April 02, 2009, 05:06:34 AM »

Welcome to IHD Vince - glad to hear that you survived your first treatment and lived to tell about it.  <g>.  I have to agree with Wallyz to eventually take charge of your treatments. 

My husband is going to be so jealous to hear you have a mini.......  of course, he is constantly car shopping - a hobby of his is my opinion. 

Take care and again  :welcomesign;

Sandyb

 :bunny:
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kristina
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« Reply #15 on: April 02, 2009, 11:07:43 AM »

Welcome Vince and thanks for letting us know how it went. For pre-dialysis-people like myself it is so improtant to find out how things go with "beginners" and to find as much information as possible in order to be well prepared. Thanks again and good luck from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
aharris2
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Volcan Pacaya, Guatemala

« Reply #16 on: April 03, 2009, 06:51:17 AM »

good attitude, good sense of humor, and a cat lover too?

WOW!!!  :bow;

Welcome  :waving;

Alene

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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
TeenHatesDialysis
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WWW
« Reply #17 on: April 04, 2009, 08:19:06 PM »

 :welcomesign; Vince


There are lots of very knowledgeable and supportive people here.  I hope that your first day at dialysis went okay, but if you have any questions or concerns....just ask away.  Someone or many usually reply very quickly.

 :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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