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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
Kidney Disease needs a spokesperson
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Topic: Kidney Disease needs a spokesperson (Read 3174 times)
kimcanada
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Kidney Disease needs a spokesperson
«
on:
April 03, 2009, 02:53:03 PM »
I beleive that Kidney Disease needs a national spokesperson, like Micheal J Fox is for Parkinson's...
If we could pick someone from this website to be the spokesperson, who would you pick...
I think that the perfect person from this site would be Zach, so much experience, positive outlook, great diet!
Who would you vote for??
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http://www.kimhoben.com
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Wallyz
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Re: Kidney Disease needs a spokesperson
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Reply #1 on:
April 03, 2009, 03:22:12 PM »
Bill Peckham, or Monrein.
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willieandwinnie
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Re: Kidney Disease needs a spokesperson
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Reply #2 on:
April 03, 2009, 03:35:27 PM »
OKAROL
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"I know there's nothing to it, but I want to know what it is there's nothing to"
glitter
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Re: Kidney Disease needs a spokesperson
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Reply #3 on:
April 03, 2009, 03:46:13 PM »
All four named so far are all excellent choices- I would give Bill the edge- because he is already standing up for dialysis people in important ways consistently. His articles are republished (probably without permission) in the local non profit news letters already. Didn't he testify before a congressional committee already?
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
paris
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Re: Kidney Disease needs a spokesperson
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Reply #4 on:
April 03, 2009, 06:17:22 PM »
Bill and Zach give us all so much hope and inspiration. And they are both so educated re: kidney disease. And they are both cuties! Okarol is a marvelous advocate. Sluff fights for each one of us and gives his heart and soul to IHD. Good question, Kim. Maybe it should be you!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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Re: Kidney Disease needs a spokesperson
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Reply #5 on:
April 03, 2009, 09:28:21 PM »
We can't forget KitKatz for her spunk and determination.
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Tinah1968
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ME
Re: Kidney Disease needs a spokesperson
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Reply #6 on:
April 04, 2009, 11:40:00 AM »
Zach, Okcarol both sound good to me.. Thier knowledge is amazing...
On another note I was listening to the Radio yesterday on my way home from work. I listened to a guy named Carl Dukes and he was talking to Alonzo Mourinig he was a basketball player for the Miami Heat that had a Kidney transplant. He said he is going to become a spokesperson and donate money for research. It was a great interview i looked for the transcript but have not found it. One of the main things he said was that really was something I learned here on this sight was EDUCATE yourself and never give up.. Just wanted to share that
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Neo
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Dont let dialysis stop you...
Re: Kidney Disease needs a spokesperson
«
Reply #7 on:
April 04, 2009, 03:16:53 PM »
I think your right, because i still run into people all the time that have no idea what the hell dialysis is.
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kellyt
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Re: Kidney Disease needs a spokesperson
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Reply #8 on:
April 04, 2009, 04:18:37 PM »
You could create a "spokesTEAM" from this website! There are so many experienced and knowledgeable people here! I agree with all the nominations given this far.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
dwcrawford
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Getting the heck out of town.
Re: Kidney Disease needs a spokesperson
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Reply #9 on:
April 04, 2009, 05:58:13 PM »
Zach, make a documentary. You have plenty of people to do the fundraising!
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
Savemeimdtba
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Re: Kidney Disease needs a spokesperson
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Reply #10 on:
April 08, 2009, 07:19:59 AM »
I heard the other day that Natalie Cole is on dilalysis.. due to drugs and alcohol so I'm not sure she'd be a good spokesman per-se. A spokesman against drugs, certainly!
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
dwcrawford
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Getting the heck out of town.
Re: Kidney Disease needs a spokesperson
«
Reply #11 on:
April 08, 2009, 07:34:06 AM »
Natalie Cole was a bit flakey about her kidney failure experience. I don't think she'd be a good spokesperon or role model. There has to be more people on dialysis who could "come out of the closet".
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
Slywalker
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Re: Kidney Disease needs a spokesperson
«
Reply #12 on:
April 08, 2009, 09:06:04 AM »
If you want someone with Name recognition it might be the Cojo guy on Entertainment Tonight? He has had two transplants and did the talk show circuit a few months ago trying to spread the work about kidney failure. He admitted his first kidney transplant was not as successful as it could had been due to his lifestyle but he saw the light and is now a big advocate for kidney education, taking the required meds, proper eating habits, no smoking, no drinking, etc.
All the very knowledgeable IHD members listed in the thread could keep propping him up and sending him out the door with lots of info.
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Zach
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"Still crazy after all these years."
Re: Kidney Disease needs a spokesperson
«
Reply #13 on:
April 08, 2009, 09:28:10 AM »
How about Gary Coleman?
And he could use the money.
But then again, so could I.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
G-Ma
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Re: Kidney Disease needs a spokesperson
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Reply #14 on:
April 08, 2009, 04:45:22 PM »
I think Kelly had a good idea..spokes team ..the first 4 people mentioned....that way the speaking appearances could be split up and the writers could collaborate.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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