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Author Topic: Steal syndrome  (Read 2922 times)
jackiemich
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« on: April 19, 2009, 07:15:42 PM »

Hello all,
By doing a google search I found this very informative site and now have a question for you all.  First, a little bit about me.  I found that I had kidney disease in June of 2008, but probably had it a lot longer than that.  I just either ignored the symptoms or attibuted it to something else.  Like standing on my feet all day, working too hard or just getting older (i am 41).  I finally went to the doc after my eye sight went blurry and my feet and ankles swelled so much that I couldn't even put on a pair of tennis shoes.  After all the tests were run, found out I had CKD, which has progressed to ESKD in Febuary of this year.  Diabetes and high blood pressure and a lovely kidney infecion are the reasons mine finally gave out on me. 
So in March I had fistula surgery in my left arm.  Unfortunetly this has given me nothing but problems.  Due to the diabetes, I don't have good veins in my lower arm so they went for an upper arm fistula.  Since the surgery I have been unable to use my arm, which is not a good thing because I am a cashier who has to use my arm all the time.  After a few minutes of just using my arm, whether it be working or helping around the house with dinner and laundry, I get the worst pain in my lower arm.  My hand is constantly numb and tingling.  I also get horrible hand cramps when I use my left hand too much. 
I went back to the surgeon in April. He said that I had a steal syndrome and since he coud'nt move it down further on my arm because of my bad veins, he is going to have to take a vein from my leg and move it up to my arm.  Needless to say, this is quite scary for me and I was wondering if anyone else had this procedure done to them.  I guess my question is did it help with the pain?  Would I have better luck with an artificial graft? 
I am not on dialysis yet even though my numbers are really sucky.  The doc is basically waiting to see if my next surgery will work before we start that.  Plus I don't really feel that bad yet so trying to push it off as long as possible.  Thanks for the help!




EDITED: Moved to Introduce yourself section- Sluff/Admin



« Last Edit: April 19, 2009, 09:16:01 PM by Sluff » Logged
willieandwinnie
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« Reply #1 on: April 20, 2009, 08:54:49 AM »

 :welcomesign; jackie. You have found a wonderful and informative site. I am a caregiver and can't answer your questions, but someone will come along and help you out. We are great for support when you need it also. Please post often and check the older threads as they contain all kinds of stuff.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #2 on: April 20, 2009, 12:59:27 PM »

 :waving;

Wow that really sucks.  Sorry i dont have an answer for you but i hope they sort it out fast for you and you can start dialysis and feel better.
Hope to see you on many of the threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Romona
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« Reply #3 on: April 20, 2009, 02:49:07 PM »

 :welcomesign;
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Joe Paul
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« Reply #4 on: April 20, 2009, 03:19:17 PM »

Welcome jackie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
G-Ma
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« Reply #5 on: April 20, 2009, 08:13:26 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #6 on: April 30, 2009, 05:52:35 PM »

hey
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monrein
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Might as well smile

« Reply #7 on: April 30, 2009, 08:07:56 PM »

 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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