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Author Topic: I Am So Excited!  (Read 3502 times)
joyfulmother
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Becky

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« on: March 25, 2009, 03:10:21 PM »
I have been on dialysis since the first of the year.  This Friday I will do my training on the cycler!!  I am so excited about it.  They said I am a "low transporter" but the doctor is letting me give it a try anyway - I might have to do one manual exchange in the afternoon but that still beats 4 a day, don't you think?

(PS:  I figured out if I bookmark this page:  http://ihatedialysis.com/forum/index.php?www;action=unread instead of the main page, I can get all the new posts on one page)
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
G-Ma
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« Reply #1 on: March 25, 2009, 03:18:04 PM »
 :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #2 on: March 25, 2009, 07:10:39 PM »
 :cheer: I hope it works for you!
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MandaMe1986
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« Reply #3 on: March 26, 2009, 10:23:08 AM »
Yey the best of luck to you! :yahoo; :2thumbsup; :bandance; :clap;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
joyfulmother
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Becky

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« Reply #4 on: March 31, 2009, 03:04:18 PM »
I ended up doing my training yesterday (Monday) and last night was my first night on the cycler.  I didn't have any alarms my first night so that was nice!  My hubby is concerned about power surge - when it is running our lamp blinks.  Anyone have this problem?  I know I must have slept but it felt like I was awake quite often, looking at the machine to see what cycle I was in.

I also had some pain while draining.  Will that get better?
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
paul.karen
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« Reply #5 on: April 01, 2009, 01:04:20 PM »
 :clap;

Glad to read your first night went alarm free.  That from what i have read doesn't seem to be the norm.  May that alarm free stuff continue for you.

As for the drainpain.  I am still pre D but have read tons.  From what i understand that should start to go away. Not sure if the Cath finds a nice home or if you just get use to it?  I wish you continued success :thumbup;

Oh and thx for the answer about <g>
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
joyfulmother
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Becky

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« Reply #6 on: April 01, 2009, 01:19:25 PM »
My second night also went great - no alarms during the night.  I did get an alarm right before disconnecting.  It kept saying it was refilling the bag, then warming the bag and check the supply line over and over during the final fill - but the bag was empty so I had to do a bypass. 

No drain pain last night or if it did, I didn't feel it cause I was asleep!!  :)
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
BigSteve
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« Reply #7 on: April 02, 2009, 04:51:03 PM »
I have had that alarm ending the final fill twice in the last month, once the bag was empty and
the other time it wasn't. It took a number of attempts to get the bypass to work. I still get drainpain
during the initial drain and the first fill until it fills again.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
kitkatz
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« Reply #8 on: April 05, 2009, 12:33:21 AM »
Can you put it on a power surge protecter?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Vicky
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« Reply #9 on: April 05, 2009, 06:41:00 AM »
My husband has been on the cycler for a month now and has never had the drain pain.  Might mention it to your nurse so she can adjust the iniital drain.   Dave's is set to 0 initial drain so it only takes whatever it finds then switches to fill, that might be the difference if yours is looking for something there it can't find.
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Vicky
been there done that
BigSteve
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« Reply #10 on: April 05, 2009, 02:52:46 PM »
My PD nurse is gradually taking down the mininum on the initial drain every month. It's now set
at 2300 MLs since my regular fill is 3000. So far it has eliminated alarms for low fill on the initial drain.
She is taking it down gradually since she is concerned about being sure all the fluid is drain before the
first fill. I will there was a read out showing the final fill so that I could have an idea of what the next
initial drain will be, minus absorption during the day. I can live with the drainpain on the initial drain, but
I would rather not have it.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
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