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Author Topic: Kubiik introduces himself  (Read 3378 times)
kubiik
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dialysed for life, not living to be dialysed
« on: March 23, 2009, 05:50:38 AM »
Hi,

I am from Prague, Czech republic, Europe, more than year on hemodialysis, after 2 unsuccessfull transplants so now not in waiting list, my real name Jiří is Czech variant of the name "George", I am looking for travel info because i like travelling and i am planning to create web page about travelling for czech dialysis patients, however USA are too far are too expensive for me, hope i will find some info in this forum history.

I eventually can help with info about europe dialysis issues, i was on dialysis in Norway, Germany, France and Spain.

kubiik
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kubiik
David13
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« Reply #1 on: March 23, 2009, 06:04:00 AM »
Kubiik, welcome to the site!   :welcomesign;

I am sure you will add a unique perspective.  I hope you will also be able to gain some valuable information and support for yourself here.

I hope to see you posting often.
« Last Edit: March 23, 2009, 06:40:28 AM by David13 » Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willieandwinnie
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« Reply #2 on: March 23, 2009, 06:36:16 AM »
 :welcomesign; kubiik. Wow! You have done dialysis in a few countries. Good for you. We are so glad you found us and we hope you sick around. There is lots to learn here and I'm sure we can learn from you and then there's support you get here. Won't find that anywhere else. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #3 on: March 23, 2009, 08:09:50 AM »
 :welcomesign;  I'm sorry to hear that both transplants were unsuccessful for you but what a great attitude you have especially about traveling and getting the most out of life even on dialysis.  I have traveled quite a bit myself and really hope to visit Prague someday.  I know that it is a most beautiful city with amazing architecture and history.  I look forward to your posts here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #4 on: March 23, 2009, 11:07:50 AM »
Welcome to the Family!   I hope you plan on sharing travel photos with us!!!   I look forward to hearing more about you.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
peleroja
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« Reply #5 on: March 23, 2009, 11:15:25 AM »
Welcome, Kubik!  This is a great bunch of people.  Glad you could join us.
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paul.karen
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« Reply #6 on: March 23, 2009, 11:26:18 AM »
 :waving;

Glad you found us.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Zach
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« Reply #7 on: March 23, 2009, 11:28:12 AM »
Good to have you join us.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #8 on: March 23, 2009, 02:08:23 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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« Reply #9 on: March 25, 2009, 12:39:34 AM »
Welcome to our community! it is great having someone from that part of the world with us!  So glad you joined.  I am sure you have lots of interesting perspectives to add to us.  This is a great place for information and support.  we have become a real family  :grouphug; as you will soon find out.
Looking forward to hearing from you.






Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #10 on: March 28, 2009, 12:48:26 AM »
Welcome kubiik, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
pelagia
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« Reply #11 on: March 28, 2009, 05:20:41 AM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
MandaMe1986
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« Reply #12 on: March 28, 2009, 09:52:46 AM »
 :waving; Happy to have you  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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TeenHatesDialysis
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« Reply #13 on: March 28, 2009, 10:15:38 AM »
 :welcomesign; Kubiik

There is lots of info posted here about traveling on dialysis and it sound as though you can add some more. Great informations and super support here.  Glad you joined our group! :welcomesign;
 :flower;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
boxman55
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« Reply #14 on: March 29, 2009, 11:08:53 AM »
Welcome to IHD, We are glad you joined. Please post often the group here is full of information.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kristina
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« Reply #15 on: March 30, 2009, 02:34:42 AM »
Hallo, Jiri,
            welcome to IHD. You say you have been to Norway, Germany, Spain and France on dialysis. Did you find the health-care in the dialysis-centres of these countries similar or were there differences? If there were differences, which ones did you notice most of all? Were there dialyse-centres where you felt better looked after? If yes, which ones? I find your idea of compiling information on different dialysis-centres in the EU most interesting and I am sure many patients will be inspired by your idea. Good luck and kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
paris
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« Reply #16 on: April 09, 2009, 08:10:55 PM »
 :welcomesign;  Isn't amazing that this disease brings people from all around the world together?   :grouphug;   We are glad you joined us.  We look forward to hearing more about the different dialysis centers you have used.  Thanks for joining IHD.





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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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