I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 29, 2024, 06:34:30 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Hoping not to feel alone anymore		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Hoping not to feel alone anymore  (Read 3774 times)
WD
Newbie
*
Offline Offline

Gender: Female
Posts: 3
« on: March 26, 2009, 04:22:54 AM »
Hello out there.  I am a dialysis patient as of Aug. '08.  I am a 58 year old female 2nd grade school teacher trying to get back to teaching but not yet feeling strong enough.  Full of questions.  Found this website on a sleepless night looking for others like me.  A little overwhelmed by the numbers on this site.  Read the rules but uncertain of protocol.  Have I already said too much too soon?  Where and how is the best way to get started?  WD
Logged
willieandwinnie
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3957
« Reply #1 on: March 26, 2009, 04:34:53 AM »
 :welcomesign; WD. We are so glad you found us. We have so much information and support here. You started just fine. Now go to the other topics and post your questions or anything else. Hope you post often and please stick around.  :cuddle;
Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
Member for Life
******
Offline Offline

Gender: Male
Posts: 43869
« Reply #2 on: March 26, 2009, 06:28:27 AM »
WD don't worry, there is no limits on what you can say, as you navigate around the site you will learn that you are not alone. Post as often as you want and ask as many questions as you need. That is why we are here. Don't let the rules scare you, they will make more sense as time goes on and are in place to keep our forum orderly and readable to everyone.

Welcome to the Ihatedialysis.com family.

Sluff/Admin
Logged
David13
Member for Life
******
Offline Offline

Gender: Male
Posts: 12712


A meow massages the heart.
« Reply #3 on: March 26, 2009, 06:36:16 AM »
Welcome, WD!    :welcomesign;

You will find this site to be a great source of both information and support.  Look around and make yourself at home!  Oh, and there are several other teachers on the site with whom I am sure you will be able to relate.

I hope to see you posting often!
Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
pklipe57
Jr. Member
**
Offline Offline

Gender: Female
Posts: 77
« Reply #4 on: March 26, 2009, 07:14:09 AM »
Welcome to IHD.  You will find this is the place to find so much information.  I have learned so much in my short time that I have been here. 
Logged
paul.karen
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2115
« Reply #5 on: March 26, 2009, 07:26:13 AM »
 :waving; WD.

Nice to meet you.  Hope to see you on many of the threads.
Glad you found us :thumbup;
Logged
Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #6 on: March 26, 2009, 07:38:15 AM »
Very glad to have you join our community!
 :beer1;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kristina
Member for Life
******
Offline Offline

Posts: 5530
« Reply #7 on: March 26, 2009, 07:44:23 AM »
Welcome and nice to meet you. Like yourself I found the site in a desperate moment and was so glad to have found it. Like yourself I was quite overwhelmed reading the rules etc, but fortunately there are kind people about helping out when something does not go as it should. I can understand your bewilderment to find yourself in the situation of being chronically unwell and having to come to terms with it. This is the site where you find comfort, understanding and a chance ot come out of isolation. Good luck and good wishes from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
peleroja
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1585


I have 16 hats, all the same style!
« Reply #8 on: March 26, 2009, 07:50:40 AM »
Welcome aboard, WD.  I'm glad you found us.  Tons of information and lots of shoulders to cry on.  Come on back and post often and let us know how you're doing.
Logged
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #9 on: March 26, 2009, 08:27:54 AM »
Welcome to our community, WD!!  You are definitely not alone anymore!  We are both contemporaries (I am 59) and colleagues (I taught High School up until 2007 when my appointment was not renewed because of my dialysis).  You have found the number one spot for information and support.  We consider ourselves a genuine family here, as you will soon find out.  :grouphug;
No, your intro was not too long.  Epoman, the founder of this site, loved a looooooooooooonnnnng intro!  We like to get to know you.
Keep reading and keep posting.


Bajanne, Moderator
Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
twirl
Member for Life
******
Offline Offline

Gender: Female
Posts: 8960
« Reply #10 on: March 26, 2009, 10:07:33 AM »
you are with friends
I have been on dialysis for four years
I taught junior high school while on the first two years of dialysis
and then it got to be too much
I hate dialysis because I cannot teach while on dialysis
I went MWF from about 4:00 until 8:30 or 9:00
we have alot of teachers on this site who still teach
Mlbarra has a transplant and she teaches
Kitkatz or here kitty, kitty, as I call her teaches and she does nocturnal dialysis and she is a character
I hate not teaching
you will be fine
Logged
MandaMe1986
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2464
« Reply #11 on: March 26, 2009, 11:25:36 AM »
first off let me say HI :waving;  Secound I was a little shocked by this site myself at first. And yeah I still feel a little new from time to time, and not sure what I should say. But you know what the best way to do it is to jump right in.  People here are wonderful.  This has become my number one website to come to.  You will feel so welcome once you get to know a few people.  We are all just one big family.
Logged
Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3788
« Reply #12 on: March 26, 2009, 11:41:06 AM »
glad to have you join us.  :welcomesign;
Logged
s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
dwcrawford
Member for Life
******
Offline Offline

Gender: Male
Posts: 5315


Getting the heck out of town.
« Reply #13 on: March 26, 2009, 04:15:17 PM »
I like your comment about "have I said too much too soon"   I've been around a few weeks now and still have the feeling I'm doing that all the time.  I did put my foot in my mouth (or more accurately my keyboard) a couple of times, but there is always someone around to stand up for you when you goof.  I really think that this kidney failure stuff sucks.  (KFSS)  Does anyone understand all of the acronyms?
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
G-Ma
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2191
« Reply #14 on: March 26, 2009, 04:43:47 PM »
 :welcomesign;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Razman
Full Member
***
Offline Offline

Gender: Male
Posts: 455
« Reply #15 on: March 26, 2009, 04:48:17 PM »
  You've found the best place to talk to others , scream if you want to or just hang out.  Lots of people are where you are or have been there and can give great advice.  Hope you stay in touch. 
Logged
pelagia
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2991
« Reply #16 on: March 26, 2009, 06:44:52 PM »
 :welcomesign;
Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
TeenHatesDialysis
Full Member
***
Offline Offline

Gender: Female
Posts: 191


WWW
« Reply #17 on: March 26, 2009, 07:01:24 PM »
 :welcomesign; WD

You are not alone! Lots of love here!  Some of the teachers in my area job share.  That may be an option for you. Do some research and find 5-10 schools that you would like to work at and send emails to the teachers to see if any would be interested in job sharing.  I was working full-time, 60 hours a week at IBM when I had my 3rd daughter and someone approached me with the idea of job sharing and I cut my hours to 20-24 hours a week for the next four years!  It was the best thing I ever did. Many people want to retain their professional careers, but cut back on hours for various reasons. Go for it!

I am relatively new here also.  My youngest daughter started dialysis 15 months ago and I wish I would have found this site sooner.  Great information and super support!  :cuddle;
Logged
Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841
« Reply #18 on: March 26, 2009, 11:08:30 PM »
Welcome WD, good to have you aboard.
Logged
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #19 on: March 27, 2009, 12:10:53 PM »
Well, you're definitely NOT alone and I hope you'll feel seriously free to say as much as you'd like or need to.  That's why we're here and truth is, the more you say the more quickly we get to know you.  You might regret it when one of us says too much back but by then hopefully you'll also know how to tell us we stepped on your toes.  :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
Member for Life
******
Offline Offline

Gender: Female
Posts: 8960
« Reply #20 on: March 27, 2009, 05:45:09 PM »
you will never feel alone
someone is here 24/7
Logged
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859
« Reply #21 on: March 27, 2009, 06:21:16 PM »
Dear WD, I am so glad you found us!  We have been waiting for you!  You are now among great friends and we are here for you anytime.  This site was created for everyone to have a safe place to speak, cry, rant, vent, laugh and just be yourself.  This is a great support group and there is tons of information about every phase of kidney disease.  Please, post often and share your story.  If you have questions, someone will have the answer.  Welcome to IHD.   :grouphug; 



paris, Moderator
Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840
« Reply #22 on: March 27, 2009, 10:15:16 PM »
Rules?  There are rules?   ;)

Welcome!  Soon you'll feel at home and your worries will all be gone.    :waving;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!