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Author Topic: Hi...I new to this website, but, have been in treatment for a while  (Read 1870 times)
Dialybro
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« on: March 24, 2009, 11:32:19 PM »
Good evening/morning (not sure when you're reading this),

I can't believe this site exists.  Much thanks to, "Epoman," for making the effort, and, having the foresight to put this up.  I know I wasn't the only one who felt this way, but, didn't realize that someone felt strongly enough to put this much work into it.  I am 39, and, was diagnosed on a beautiful day in March, seven years ago.  I was Blessed by God, who regenerated my kidneys for about a year and a half during this period.  And, after that, I started treatment again, on a beautiful day in November about four years ago.  Wow, didn't realize it's March, in fact I was hospitalized on March 24th...hmmm, strange, today.  Wow...not sure how I'm feeling right now.  This is strange...perhaps I should stop writing and come back to this later...I'm sorry! 
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RichardMEL
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« Reply #1 on: March 24, 2009, 11:36:53 PM »
Well, welcome bro... reading your post you seem a bit overwhealmed by it all. Not treatment so much, but perhaps relating your story. It's OK. Just say as much or as little as you want. We're glad you found our site and hope it helps you!

 :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #2 on: March 24, 2009, 11:50:32 PM »
Welcome to our community!  This is a real family here :grouphug;  Take your time and let us know how you are doing.  This is a tremendous place for information and support (yes, even fun at times!).  Yes, we are very grateful to Epoman.  This is now two years since he left us, but his legacy is going stronger and stronger!  So you just keep reading and keep posting.
Looking forward to hearing more from you.  :cuddle;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #3 on: March 25, 2009, 06:47:41 AM »
 :welcomesign; Dialybro. So glad you joined us and we are a great site aren't we. Please look around and check some of the older threads and post often. Welcome to the samily.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: March 25, 2009, 09:50:28 AM »
Welcome aboard.  Lots of good information here and shoulders to cry on.  Come on back and let us know how you're doing.
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MandaMe1986
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« Reply #5 on: March 25, 2009, 10:09:00 AM »
Why welcome!, yes this website is awosme.  I am so happy you found it!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Zach
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"Still crazy after all these years."
« Reply #6 on: March 25, 2009, 10:36:55 AM »
Glad to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
TeenHatesDialysis
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WWW
« Reply #7 on: March 25, 2009, 09:47:18 PM »
 :welcomesign; Dialybro

Love the name! This is a great support group!  :2thumbsup; to Epoman for creating it and all of the great people here to support you! Great information (I think its better than the info I get from the docs), very entertaining and supportive group.
 :flower; Thanks for joining us!
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Sluff
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« Reply #8 on: March 26, 2009, 07:46:55 PM »
No apology necessary, Welcome to ihatedialysis.com

Not to worry!  It's normal to feel really down when you're facing a big change in your life. Everyone here understands what you are feeling, it is OK to come here and rant. That is the whole reason we exist. Come back when you are ready, we will be here.

Sluff/Admin
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G-Ma
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« Reply #9 on: March 26, 2009, 08:49:25 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #10 on: March 26, 2009, 10:47:12 PM »
Welcome Dialybro, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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