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| | |-+  Help finding a clinc to do NHHD with our NxStage
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Author Topic: Help finding a clinc to do NHHD with our NxStage  (Read 6382 times)
Maggie and Jeff
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« on: September 24, 2008, 10:00:50 AM »

       We are looking for a clinic the offers NHHD or it's equivalent.  We've been using the NxStage at home since we started over two years ago and have been asking about NHHD.  Davita says "They are not approved to do NHHD".  It is very frustrating Knowing it can be done Yet it is not offered to us.  We feel it would free up our days and make it easier to work. 

Is any one using NxStage NHHD through Davita?  If Not, which clinic do you use?

Any advice or help would be greatly appreciated.
« Last Edit: September 24, 2008, 10:39:11 AM by Maggie and Jeff » Logged

The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?

Jeff is the needle pusher Maggie is the pincushion.
Wallyz
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« Reply #1 on: September 25, 2008, 10:02:14 AM »

Where are you, Maggie?
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Wallyz
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« Reply #2 on: September 25, 2008, 10:06:49 AM »

Looked at your Profile.

Did a search for Dialysis Centers near Pulaski  Here

I would start calling until you fond someone willing to do the Nocturnal.
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Maggie and Jeff
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« Reply #3 on: September 25, 2008, 02:08:00 PM »

Thanks

I found this one -Fresenius Medical Care (FMC) - Discovery- yesterday they do NHHD but we really like the NxStage's portability so I started calling the clinic trials for NHHD with the NxStage they are all in a meeting today I'll call again tomorrow.

Comparison of Nocturnal Hemodialysis (NHD) and Short Daily Hemodialysis (DHD) With the NxStage® System One™

This study is currently recruiting participants.
Information provided by NxStage Medical

Please refer to this study by its ClinicalTrials.gov identifier: NCT00667511


Locations

 
United States, California
 Satellite Healthcare/Wellbound      Recruiting
       Mountain View, California, United States, 94041 
       Contact: Jugjeet Atwal     408-309-5847         
       Principal Investigator: Brigitte Schiller-Moran, MD             
 
United States, Missouri
 Barnes Jewish Dialysis Center      Recruiting
       St. Louis, Missouri, United States, 63110 
       Contact: Janet Riley     314-286-0804         
       Principal Investigator: Brent Miller, MD             
 
United States, Nebraska
 Dialysis Center of Lincoln      Recruiting
       Lincoln, Nebraska, United States, 68512 
       Contact: Michelle Carver     402-742-8500         
       Principal Investigator: Leslie Spry, MD             
       Sub-Investigator: Timothy Govaerts, MD             
 
United States, New York
 Rubin Dialysis      Recruiting
       Saratoga Springs, New York, United States, 12866 
       Contact: Shari Meola     518-271-0702         
       Principal Investigator: Christopher Hoy, MD             
       Principal Investigator: Rachid Daoui, MD             
 
United States, Wisconsin
 Commonwealth Dialysis      Recruiting
       Greenfield, Wisconsin, United States, 53220 
       Contact: Gail Scott     414-281-6806     gscott@thekidneyinstitute.com     
       Principal Investigator: William Elliott, MD             


Sponsors and Collaborators

 
NxStage Medical


Investigators

 
Study Director:      Paul Clark      NxStage Medical     


I also got our kidney doctor to start calling (thought he could cut the red tape better than I)
Our thought is that this is NHHD so we shouldn't need to go to thier office very often.  The closest one is only 350mi.  and maybe they can come to our clinic to train us.  We will see I'll keep ya'll posted.
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The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?

Jeff is the needle pusher Maggie is the pincushion.
swramsay
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« Reply #4 on: March 01, 2009, 03:17:34 PM »

Jeff & Maggie,
did you find a clinic for nocturnal? I replied to your original question in another thread. I will switch from Davita to Northwest Kidney when I am ready for nocturnal with the NxStage. I've talked with both dialysis centers and they are aware of my goal. I won't be surprised if Davita works something out with me by that time. If not, no problem. I will have to do a short one-time training with NW Kidney to get up to speed with the nocturnal. I love the nurse I have with Davita so I am hoping they will make the right decision and I can stay.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
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