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Author Topic: Hey Adam, is that you??  (Read 6882 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 03, 2008, 03:42:08 PM »


Saw this on YouTube:
http://www.youtube.com/watch?v=Hok5tr8HXEU
and
http://www.youtube.com/watch?v=8LG3B-EQHA0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #1 on: July 03, 2008, 04:39:28 PM »
That can't be Adam there is no glue bottle in sight... sorry Adam I had to say that. :)
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Adam_W
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Me with Baron von Fresenius
« Reply #2 on: July 03, 2008, 05:10:37 PM »
That's me alright. I have several more videos on Youtube showing more NxStage stuff, plus a few of my railroad models in operation.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
pelagia
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« Reply #3 on: July 03, 2008, 05:39:01 PM »
That's amazing to watch Adam.  Looks like you have it completely under control!  I like the model trains, too.  My dad was a huge model train enthusiast when I was little and he had a big train set up in our basement.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kellyt
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« Reply #4 on: July 03, 2008, 05:40:17 PM »
 :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #5 on: July 03, 2008, 06:30:06 PM »
 :clap;  Very cool! 
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paris
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« Reply #6 on: July 04, 2008, 07:50:52 PM »
Thanks for putting that video on Youtube, Adam.  I am going to share it will friends and family so they can visually see what home hemo is all about.   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: September 16, 2008, 11:12:46 PM »

Here's a recent hemo video by HappilyDayzed

"Here is a short one I made so you all can see what a dialysis patient must endure every other day. If you know someone suffering from kidney disease let them know you understand their struggle a little better now."
http://ca.youtube.com/watch?v=cIp2OLPiosE
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #8 on: September 17, 2008, 12:26:04 AM »
the whole world should see these.
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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For You Are Crunchy And Taste Good With Ketchup
Sunny
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Sunny
« Reply #9 on: September 17, 2008, 02:47:07 PM »
What a wake up call.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
twirl
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« Reply #10 on: October 15, 2008, 06:17:04 PM »
Adam - do you stick yourself
sorry I could not make it thru all of the video
I hate dailysis
and can you swim with that kind of D
and do you do it every day
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pelagia
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« Reply #11 on: October 17, 2008, 08:14:47 AM »
Wow.  Very tough to watch.  Harder still to see up close what so many of you are going through on a regular basis.  :'(

I know it's what you need to stay healthy, but still it makes me  :'( , sorry...

Stephen had a permacath, so we did not deal with the needles and the fistula.

The music is by a friend of ours.  It's a very small world.

 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
twirl
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« Reply #12 on: February 10, 2009, 04:55:45 AM »
wow dude
the facial hair is so cool
 ::)
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kimcanada
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« Reply #13 on: February 28, 2009, 06:02:22 AM »
I couldn't watch the video, is that Adam in the video? 
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