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Author Topic: Kidney Backup Call  (Read 4777 times)
rookiegirl
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« on: March 04, 2009, 05:37:24 PM »
I'm so scared.  Wednesday, March 4, 2009 at 7:05PM, I received a phone call from the Transplant Coordinator.  She told me I'm listed as a "kidney backup".  The potential donor is middle age male with creatinine of 0.9-1.0.  According to the coordinator this is good and normal.  At this time, it will be around 1:00AM before the gentleman will be in the OR.  They will know more once they do all the testing.

I'm scared to death.  Right now I'm feeling confuse and shock.  My pessimistic self is making me feel I should not do it.  I guess I'm feeling this way because I really don't feel sick.  In fact, I feel great most of the time.  If you see me in person, you would never guest I was even sick.  Don't get me wrong, I'm thankful for the opportunity.

I'm trying to read more on some of the posts from people that already went through the process.  Learning from their experiences.  Especially, all the pros and cons.

I know it's not guaranteed yet, but I'm just thankful there is hope that I may not have to wait 5-7 years on the waiting list.

I'm going to continue to pray about this.

RG
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Rerun
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Going through life tied to a chair!
« Reply #1 on: March 04, 2009, 05:47:19 PM »
RG you don't have to take it.  Another one will come along.  Think about it.  It is a wonderful opportunity but not a cure.  There are a lot of drugs to take the rest of your life, but it will get you off the machine if you are on it yet.  Sorry, I didn't do my homework on you. 

If you are on the machine I would take it.  It will make your life more normal.  But, if you are just not ready then pass and another chance will come.

Sorry, I wasn't much help.               :cuddle;   Best of luck whatever you decide and keep us posted.
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okarol
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« Reply #2 on: March 04, 2009, 06:17:25 PM »

Best wishes to you no matter which way it goes.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #3 on: March 04, 2009, 06:22:32 PM »
It's always a tough tough decision in my view RG and one that requires a definite leap into the unknown because there are no guarantees.  Just keep on feeling/praying your way through it and if you don't feel ready to grab the empty trapeze coming at you then don't do it.  I'll be thinking of you and trust that you'll come to the right decision for you.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #4 on: March 04, 2009, 06:39:04 PM »
If it feels right, you will know.
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Sluff
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« Reply #5 on: March 05, 2009, 06:21:06 AM »
I will pray with you that you have the strength and wisdom to make the right decision. Best of luck RG.  :grouphug;
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paddbear0000
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« Reply #6 on: March 05, 2009, 11:28:00 AM »
It's been 13 1/2 hours since the donor went in to surgery. Is no news, good news?
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paul.karen
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« Reply #7 on: March 05, 2009, 11:32:36 AM »
I say jump on it.
You may feel good today as i also feel great.  But in a couple months that feeling may go away fast.
if it was meant to be so be it.  If it wasnt you wont get it.

Why go on dialysis if you can avoid it.
From everyhting i have read here most agree if you can get a donor prior to dialysis DO IT.

Good Luck
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #8 on: March 05, 2009, 12:30:08 PM »
 :cuddle; Thinking about you rookiegirl.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #9 on: March 05, 2009, 02:03:09 PM »
We are all thinking about you.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
breezysummerday
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« Reply #10 on: March 05, 2009, 02:17:36 PM »


Oh my gosh....waiting....waiting.....
Did she or didn't she?


Hope the right choice for you was made!


waiting....waiting...waiting....
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
rookiegirl
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« Reply #11 on: March 05, 2009, 03:23:07 PM »
Got a call this morning @ 9:30am.  NO GO!!!  Oh well, better luck next time.  I'm now hopeful for the next opportunity to come.

Thanks for all the support.

RG
Logged
2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
okarol
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« Reply #12 on: March 05, 2009, 03:24:36 PM »

It's a good sign, makes it more real and gives you the chance to be ready when it happens again!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #13 on: March 05, 2009, 03:53:45 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #14 on: March 05, 2009, 04:30:51 PM »
It is exciting to know you are getting very close.  I am excited for you!   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paddbear0000
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Dogs & IHDer's are always glad to see you!

WWW
« Reply #15 on: March 05, 2009, 07:15:49 PM »
 :cuddle; :cuddle; :cuddle;
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kellyt
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« Reply #16 on: March 05, 2009, 08:18:59 PM »
I was able to avoid dialysis (at least for now) and I, too, didn't feel that "sick".  Tired yes, but sick no.  I'm very glad I was able to transplant and stay off dialysis.  As long as you make the decision for yourself it will be the right decision.

Good Luck Rookiegirl!    :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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Cattitude
« Reply #17 on: March 07, 2009, 08:38:31 AM »
 :grouphug;

Well, it's good to know you are far enough up the list to get a call, anyhow. 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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