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Author Topic: Time to start?  (Read 1730 times)
openboat
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« on: February 17, 2009, 10:46:55 AM »

I got my latest labs back, GFR dropped from 18 to 14 in three months and the nephrologist wants me to go ahead and start PD.   :(  I had planned to do home HD when necessary, but she said it's better to do PD avoid doing any vascular damage as long as possible.  It's the first time I've heard this, as yet PD and HD have been presented as equally good options.   ???

I think I'd be better off waiting to see if my transplant can happen soon enough.  I know I read somewhere that transplants do better if they happen before dialysis starts, but I can't find any links to that right now.  I'm waiting on a call from my transplant coordinator to see what she thinks, since my donor is almost done with the evaluation.

Any advice from the wise and experienced IHDers who started dialysis before a transplant?
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paul.karen
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« Reply #1 on: February 17, 2009, 11:30:09 AM »

Well im neither wise nor experienced but i wish you luck with whatever decisions arise for you.

I will say that many doctors and people differ when it comes to HD vs PD.  I think this is a personal decision.
I will be doing PD and also would like a Fistula just incase the PD goes bad or gets infected.

But i hope your New Kidney will make it to you before you have to start.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wallyz
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« Reply #2 on: February 17, 2009, 12:11:17 PM »

Home, extended hemo dialysis is the best therapy out there right now.  Work that direction.
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kellyt
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« Reply #3 on: February 17, 2009, 12:43:33 PM »

Receiving a transplant before ever doing/needing dialysis is the goal for nephrologists and surgeons when it is at all possible.  I was fortunate enough to receive a living transplant without ever having to do dialysis and the doctors/surgeons were thrilled.  Everything thus far has been wonderful.  I thought I was going to have to dialysis the night before transplant but the doctor said that if I had never done dialysis he would prefer not to.

My GFR at the time of transplant was 7 and it had been 7 for quite a few months.  My creatinine was 5.1.   I was still feeling quite while at both of those numbers, but my neph was holding a chair for me at the dialysis center he sees patients at since March 2008.  We were definitely ready, but fortunate enough not to need it.   I hope the same for you.   Good Luck.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #4 on: February 17, 2009, 03:22:50 PM »

I would absolutely choose a pre-emptive transplant if at all possible.  Dialysis isn't easy, not on the body, not on the mind, not on the veins.  If your donor checks out OK I don't see any downsides to bypassing D altogether.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
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« Reply #5 on: February 17, 2009, 03:33:23 PM »

I can see your doctor's point - there are a limited number of spots you can have a vascular access, and once those are destroyed, it's difficult to get good clearances.  If you are more comfortable with the idea of doing hemo, though - wouldn't it work both ways?  If you can't do hemo anymore, then you could switch to PD.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

paddbear0000
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« Reply #6 on: February 17, 2009, 10:36:23 PM »

The big question is, how are you feeling? If you aren't feeling sick, why put yourself through dialysis at all if you don't have too. I'm only starting my second week of dialysis, but I can tell you, it sucks!!!
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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