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Author Topic: So happy that I am not losing the kidney.  (Read 3673 times)
deafman
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« on: February 10, 2009, 04:22:26 AM »
Hi All ;

I am so happy today as I have just got back from visiting my kidney specialist as my creatine level have been going up in the last few months, and as a result I had a kidney biopsy last week.

It was found that the kidney was not in danger.  The increase creatine was due to the side effects of one of my medication. :bump;

It was so much of a relief. I feel like going down to the pub and to celebrate.


 :beer1;  :beer1;  :beer1;  :cuddle;




EDITED: Removed Java script error, fixed smiley errors - Sluff/Admin
« Last Edit: February 10, 2009, 06:14:39 AM by Sluff » Logged
Wenchie58
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« Reply #1 on: February 10, 2009, 04:23:29 AM »
 :clap; :clap; :clap;

Congrats on your good news!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
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mikey07840
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« Reply #2 on: February 10, 2009, 04:24:12 AM »
Congratulations, This is wonderful news.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

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paul.karen
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« Reply #3 on: February 10, 2009, 04:30:33 AM »
Great news Deafman  :2thumbsup;
Ill head to the pub and slam a few back with you  :beer1; :beer1;
P&K
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monrein
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« Reply #4 on: February 10, 2009, 05:48:10 AM »
That's very good news DM.  Which medication was causing the creatinine to rise?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #5 on: February 10, 2009, 06:15:49 AM »
Great News !  :2thumbsup;
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willieandwinnie
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« Reply #6 on: February 10, 2009, 06:25:12 AM »
 :thumbup; That is wonderful news. Hope you continue to do well.  :cuddle;
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« Reply #7 on: February 10, 2009, 08:15:58 AM »

That's great to hear! Cheers!  :beer1;
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Joe Paul
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« Reply #8 on: February 10, 2009, 10:16:46 AM »
Glad to hear its just a medicine adjustment, hoping things continue to go well  :thumbup;
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« Reply #9 on: February 10, 2009, 10:21:30 AM »
WHY the hell didn't they adjust medications before the biopsy.  Biopsys are very dangerous to kidney transplants.  Biopsys should be a "Last Resort" test.

Oh, yeah, they get more money for biopsys.... I forgot.... how stupid of me.

I'm glad you are okay, but weeks and weeks of medications being too high aren't exactly too good for your kidney either.
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paris
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« Reply #10 on: February 10, 2009, 12:27:30 PM »
Deafman,  Great news!    :2thumbsup;   I think we will all join you in celebrating   :beer1;
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kellyt
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« Reply #11 on: February 10, 2009, 12:28:27 PM »
That is great news!  Congratulations!  Way to stay on top of things.   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
deafman
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Yes it is that crazy deaf bloke from the Top End!
« Reply #12 on: February 11, 2009, 05:21:33 AM »
Hi All

Thank you for the congratulation that I have.

The medication that cause the creatine was Trimethoprim Sulfamthoxazole, which is known in Australia as Bactrim.

The transplant unit have been giving this medication to all renal transplant patients in the area as there are a risk of Melioidosis, if it caught by any person that is at high risk such as a renal transplant patient can very hard to treat and fatal. 

In most cases, as I can understand it does create the creatine level to go up, however my creatine level went up a lot more then they expected.

So it is a catch 21 situation  :banghead; :banghead;

To explain what is Melioidosis disease I have included a link http://en.wikipedia.org/wiki/Melioidosis , http://www.healthylivingnt.org.au/content/?action=getfile&id=45

After discussion with the renal specialist, they have strongly advised me to stay on the medication as my creatine level have stablised and it is too risky for me to stop taking it.  However at the end of the wet season, I will be able to cease having this medication until the next wet season starts again. 

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monrein
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« Reply #13 on: February 11, 2009, 06:00:38 AM »
And what a nasty little Catch-22 it is too.  I'd never heard of that before.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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« Reply #14 on: February 11, 2009, 12:14:48 PM »
Bloody great news mate

 :2thumbsup;
 :bandance; :bandance; :bandance;
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kellyt
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« Reply #15 on: February 11, 2009, 04:31:36 PM »
I'm so glad you (they) caught it in time.  I'm sure it was a very frustrating situation for you to be in.


I'm on Bactrim (antibiotic).  I think I take it for 2.5 to 3 more months (six months total post-transplant).  My Creatinine has been holding a 1.1, going as low as .9 for about one week.  I have my next labs on Monday.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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