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Mandarin
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« on: August 30, 2006, 10:16:59 AM »

Hi, I'm Mandarin, I've ben on Dialysis for three years, at first I was on PD but I had a problem, the fluid leaked into my lungs, so they put me on Hemo.  I was very afraid at first, but I've gotten better.  My kidneys failed because of high blood pressure and genetics.  My brother's kidneys also failed because of high blood pressure, but he got a transplant about 3 years ago.  He is doing well.  I am on the transplant list, but I am afraid of that also.  I'm just a chicken about all of this.
I found this site in a magazine called Nephrology.  I was very happy to know that I'm not the only person that hate dialysis.  I was afraid to hate dialysis, because I thought God might do worse things to me for being ungrateful for my life.  My husband always tells me to be positive!  It is not that I am ungrateful, it is just that I hate dialysis.  So, thank you everyone for being here. People that understand!
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My husband says,"the glass is half full, not half empty", I almost believe him.
goofynina
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He is the love of my life......

« Reply #1 on: August 30, 2006, 10:27:26 AM »

Hi Mandarin, thank you for introducing yourself and Welcome to the best website regarding this matter.  Not only will you find that we are an awesome websited but we are an even more awesome support group.  We have become one big family here and we are always willing to lend an ear or give advice.  so please, do not hesitate to read the posts, ask questions and post comments and concerns as well.  We look forward to hearing more from you and i know it is hard but try to be positive. :) :)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Black
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« Reply #2 on: August 30, 2006, 11:52:51 AM »

Glad you found us.   :)   This a wonderful source for information and support ... and the best place to vent anger and frustrations!!
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Sluff
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« Reply #3 on: August 30, 2006, 11:55:45 AM »

Glad you found this site. Welcome home.
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Joe Paul
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« Reply #4 on: August 30, 2006, 01:40:35 PM »

Welcome Mandarin , glad to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sara
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« Reply #5 on: August 30, 2006, 06:34:37 PM »

Nice to meet you Mandarin.  I grew up in a place called Mandarin, that's pretty funny.   ;)
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
angieskidney
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« Reply #6 on: August 31, 2006, 01:34:29 AM »

Hi Mandarin!
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
MattyBoy100
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What's dialysis?

« Reply #7 on: August 31, 2006, 02:55:25 AM »

Hi Mandarin,

This is the BEST site to come to for support and advice and to have a good old moan if you want!
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SCOTLAND NO.1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #8 on: August 31, 2006, 07:59:43 AM »

Welcome to our sharing and caring community.  This is just the kind of place for you to be.  You are free to vent, and you can also have lots of fun.  Looking forward to hearing a lot from you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
mallory
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« Reply #9 on: August 31, 2006, 01:43:39 PM »

Mandarin,  welcome to the site!  And don't worry, you can be positive about your life and still hate dialysis, in fact, I can't imagine why anyone would not hate dialysis.  This is a great place to come for support or if you have questions.  We're glad you're here!

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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
John S.
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« Reply #10 on: August 31, 2006, 09:54:32 PM »

Hi Mandarin.........
Welcome!! It's a great place to voice your frustrations and good stuff.
john s. >:D

ps...remember...question your docs and nurses about everything!!!
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Zach
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"Still crazy after all these years."

« Reply #11 on: August 31, 2006, 09:58:35 PM »

Good to have you here!!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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